There are 1 million people in Michigan with a rare disease, (and their family and friends) who will be impacted by passage of the Rare Disease Advisory Council (RDAC). Members of the RDAC are meant to offer advice, direct, and develop recommendations for policy around challenges in seeking treatment and healthcare delivery for rare disease patients. This interview explains why passage of the RDAC is critically important for Senate Majority Leader Winnie Brinks to call for a vote on HB 4167 before the full Senate.
Time to pass HB 4167: The Bonnell Foundations Laura Bonnell talks with Greg Bowman on WWJ.
