The Middle East CF association (MECFA) is working to make lives better for people cystic fibrosis. Christine Noke is the co-founder and CEO of MECFA. The stories you will hear in this podcast are sometimes gut wrenching and unimaginable. It will also inspire you to help raise awareness about CF everywhere, and make sure that someday everyone has a level playing field in healthcare. Noke says their goals are simple – to improve:
- Life expectancy and quality of life for CF patients regionally
- Access to CF Care Centers,
- Standards of Care
- Access to necessary drugs and equipment.
- Research and clinical trials in the region;
- Awareness about CF and Rare Disease in the region.
Let’s help spread the word.
For more information on The Bonnell Foundation and how you can help fight CF in Egypt, find us at https://thebonnellfoundation.org/
Find the Middle East Cystic Fibrosis Association here: https://www.mecfa.org/
Vertex Pharma – the science of possibility. https://www.vrtx.com
The original music in this podcast is performed by Kevin Allan, who happens to have Cystic Fibrosis. You can find him on Facebook here: https://www.facebook.com/KevinAllanMusic
This podcast was produced by JAG in Detroit Podcasts. https://jagindetroit.com/