by Guest Author | Oct 20, 2025 | Podcasts
If you’ve ever been part of the cystic fibrosis community, you’ve probably heard of the sweat chloride test, maybe you’ve even had one yourself. But what does that test really measure, and why does it still matter in the age of CF modulators? Laura talks with Dr....
by Guest Author | Oct 13, 2025 | Podcasts
When Pete Proimos decided to share his cystic fibrosis story at 40, after decades of silence , it marked a turning point. That decision, guided by his philosophy “Out at 40,” sparked a movement built on honesty, empathy, and empowerment. Today, as CEO of the Filotimo...
by Guest Author | Oct 6, 2025 | Podcasts
Turning Diagnosis into Purpose: Deana and Liam’s Mission When Liam was diagnosed with cystic fibrosis (10 years ago) at just three weeks old, Deana’s world shifted overnight. What began as one mother’s fight for her child has grown into a movement empowering families,...
by Guest Author | Sep 29, 2025 | Podcasts
I had the joy of meeting Heather Ashle in person at a Family Night hosted by Children’s Hospital of Michigan a couple months ago. Her energy lit up the room as she spoke—honestly, nervously, and beautifully, about what it means to live with cystic fibrosis (CF). It...
by Guest Author | Sep 22, 2025 | Podcasts
The unstoppable Jennifer Dunlea is an advocate, a fighter, and an all-around powerhouse. Born with Cystic Fibrosis, Jen has faced more medical battles than most people do in a lifetime, including surviving a rare cancer at just 23 years old. She’s a two-time double...
by Guest Author | Sep 15, 2025 | Podcasts
Episode Notes The challenges and triumphs of living with a rare disease. Leslie Baldwin shares her personal journey with Common Variable Immune Deficiency and Ehlers-Danlos Syndrome. You’ll hear what fueled her passion for advocacy and the creation of Michigan...
