by Guest Author | Aug 18, 2025 | Podcasts
“I always say that singing and performing was as much a part of my DNA as cystic fibrosis.” Julia Rae From the moment Julia Rae could speak, she was singing, and from the moment she could dream, she was already imagining a bigger stage. As her mother fondly recalls,...
by Guest Author | Aug 4, 2025 | Podcasts
Never Just Surviving: Sophie Holmes on Running 36 Marathons with Cystic Fibrosis Despite a schedule packed with training, advocacy, and breaking world records, Sophie Holmes of the U.K. always makes time to share her story, and we’re so grateful she did. Diagnosed...
by Guest Author | Jul 21, 2025 | Podcasts
“It’s an honor to be an advocate,” says Laura Bonnell, founder of The Bonnell Foundation. “We are the government—people are. If we don’t fight for fair laws that help the people they’re meant to serve, who will?” In this episode, Laura is joined by five passionate...
by Guest Author | Jul 7, 2025 | Podcasts
We have a powerful conversation about dedication, innovation, and impact in the cystic fibrosis community in this podcast. I’m joined by two incredible guests from MVW Nutritionals: Mike Walters and Jason Vandiver. Mike Walters is a true pioneer in pharmaceutical...
by Guest Author | Jun 30, 2025 | Podcasts
Substack is where I discovered Dr. MeiLan Han! I was browsing through and was pleasantly surprised to read an article, and learn that she wrote a book called, Breathing Lessons. And to top it off, she’s from my home state of Michigan. I also learned the Dr. Han’s book...
by Guest Author | Jun 16, 2025 | Podcasts
“Oh, the people you’ll meet, and the places you’ll go…” That classic Dr. Seuss line couldn’t have been more true when I found myself at a rare disease conference, taking with Dr. Gabriel Cohn. A quiet presence with a resume that reads like a roadmap...
