by Guest Author | Sep 15, 2025 | Podcasts
Episode Notes The challenges and triumphs of living with a rare disease. Leslie Baldwin shares her personal journey with Common Variable Immune Deficiency and Ehlers-Danlos Syndrome. You’ll hear what fueled her passion for advocacy and the creation of Michigan...
by Guest Author | Sep 8, 2025 | Podcasts
Miss America 2025 Abbie Stockard: A Champion for Kids, Health, and Cystic Fibrosis Abbie Stockard, Miss America 2025, joins us to share her incredible journey, from Auburn University nursing student and Tiger Paws dancer to national advocate and role model. At just...
by Guest Author | Sep 1, 2025 | Podcasts
What if a scan could do more than show you a picture, what if it could tell you a story about what’s happening inside a child’s body, in real time? That’s exactly what Dr. Chris Flask is working to make possible. Dr. Flask is a Professor of Radiology, Biomedical...
by Guest Author | Aug 18, 2025 | Podcasts
“I always say that singing and performing was as much a part of my DNA as cystic fibrosis.” Julia Rae From the moment Julia Rae could speak, she was singing, and from the moment she could dream, she was already imagining a bigger stage. As her mother fondly recalls,...
by Guest Author | Aug 4, 2025 | Podcasts
Never Just Surviving: Sophie Holmes on Running 36 Marathons with Cystic Fibrosis Despite a schedule packed with training, advocacy, and breaking world records, Sophie Holmes of the U.K. always makes time to share her story, and we’re so grateful she did. Diagnosed...
by Guest Author | Jul 21, 2025 | Podcasts
“It’s an honor to be an advocate,” says Laura Bonnell, founder of The Bonnell Foundation. “We are the government—people are. If we don’t fight for fair laws that help the people they’re meant to serve, who will?” In this episode, Laura is joined by five passionate...