by Laura Bonnell | Jul 16, 2022 | News, Videos
Meeting Izraa, as you’ll see in this video, took me right back to diagnosis day. I began crying as soon as Izraa asked me if her 7 month old son would live. We hugged and couldn’t let go. I can’t speak Arabic and she can’t speak English, but...
by Laura Bonnell | Jul 15, 2022 | News, Videos
I’m Laura Bonnell and I am in Egypt to deliver my daughters pediatric vests to the Egyptian CF doctors here. Check out the video.
by Laura Bonnell | Jul 15, 2022 | News, Videos
Laura Bonnell is in Egypt with Stacey Fogerty Brown, U of M Dietician. The pair met Dr. Nasr in Cairo, Egypt to deliver vests donated by Bonnell’s daughters. Bonnell also received vitamins from a CF Mom and Creon (enzymes). The donations quickly were used.
by Laura Bonnell | Jan 11, 2021 | News
Warrior Wednesday amplifies the voice of the cystic fibrosis community worldwide! As the ever changing landscape of CF brings new hope and new challenges, they stand united to empower our CF Warriors and their families. Read the Warrior Wednesday Impact Report...
by Bonnell Foundation | Feb 13, 2018 | News
February 12, 2018 — Vertex announced that the U.S. FDA approved SYMDEKO (tezacaftor/ivacaftor and ivacaftor) for treating the underlying cause of cystic fibrosis (CF) in people ages 12 and older who have two copies of...
by Bonnell Foundation | Feb 5, 2018 | News
January 31, 2018 — Vertex announced the selection of two next-generation correctors, VX-659 and VX-445, to advance into Phase 3 development as part of two different triple combination regimens for people with cystic fibrosis (CF). This decision was based on...
