by Guest Author | Oct 20, 2025 | Podcasts
If you’ve ever been part of the cystic fibrosis community, you’ve probably heard of the sweat chloride test, maybe you’ve even had one yourself. But what does that test really measure, and why does it still matter in the age of CF modulators? Laura talks with Dr....
by Guest Author | Oct 13, 2025 | Podcasts
When Pete Proimos decided to share his cystic fibrosis story at 40, after decades of silence , it marked a turning point. That decision, guided by his philosophy “Out at 40,” sparked a movement built on honesty, empathy, and empowerment. Today, as CEO of the Filotimo...
by Guest Author | Oct 6, 2025 | Podcasts
Turning Diagnosis into Purpose: Deana and Liam’s Mission When Liam was diagnosed with cystic fibrosis (10 years ago) at just three weeks old, Deana’s world shifted overnight. What began as one mother’s fight for her child has grown into a movement empowering families,...
by Guest Author | Sep 29, 2025 | Podcasts
I had the joy of meeting Heather Ashle in person at a Family Night hosted by Children’s Hospital of Michigan a couple months ago. Her energy lit up the room as she spoke—honestly, nervously, and beautifully, about what it means to live with cystic fibrosis (CF). It...
by Guest Author | Sep 22, 2025 | Videos
The Bonnell Foundation was honored to have Dr. Francis Collins say a few words, via this video, at the Harvest of Hope event on Saturday, September 20, 2025. As a scientist he has changed the world for people with cystic fibrosis. As a man of faith, he continues to...
