(Source: MIRS.news, Published 11/26/2024) Rep. Jason Morgan (D-Ann Arbor) is pushing for the Rare Disease Advisory Council to be a priority in the Senate this lame-duck session.
Under HB 4167, the council would advise the Department of Health and Human Services (DHHS) and other state agencies on research, diagnosis and treatment efforts related to rare diseases.”
An affliction is classified as a “rare disease” if it affects fewer than 200,000 individuals in the United States. There are approximately 7,000 diseases that fall under this category that have been identified in Michigan.