Cystic Fibrosis Awareness Month: Foundation raises money to help those with rare disease
By Amy Lange, FOX 2 Detroit The Bonnell Foundation Founder, Laura Bonnell talks to Fox 2 News reporter/anchor Amy Lange about the importance of raising awareness about cystic fibrosis, fundraising and making people understand that anyone can be born with the disease,...
Innovation – A Mother’s Story
Breakthrough cures for cystic fibrosis start by promoting science and innovation. https://www.youtube.com/watch?v=X9W4LLQrzBo
Michigan mom fighting for daughters with cystic fibrosis
Laura Bonnell, the founder of a foundation bearing her family's name, is working to make sure people with rare diseases get representation in Michigan. Read the story here
Rare but not Alone: 1 in 10 Live with a Rare Disease
By Institute for Patient Access The 30 million Americans diagnosed with a rare disease represent a large, underserved patient population. Their complex conditions are often poorly understood, and most have no approved treatment. Nevertheless, rare disease patients and...
Living with Cystic Fibrosis: I’m Laura Bonnell and This is My Story
BioMatters - Winter 2022, Patient Advocate Issue by MichBio - Issuu Read the story here
Laura Bonnell talks about the Rare Disease Advisory Council (RDAC) and cystic fibrosis on local NPR station, WDET in Detroit.
Bonnell was interviewed by Tia Graham and on the Morning Edition show with Pat Batchelor. Listen to the interview:
Michigan residents with rare diseases could get more state support
By Vladislava Sukhanovskaya - Capital News Service About a million Michiganders with rare diseases could receive better treatment if legislators establish a Rare Disease Advisory Council. Read the story here
Laura Bonnell’s Night of Hope to defeat cystic fibrosis is Sept. 25
By Amy Lange and David Komer online producer, FOX 2 Detroit FOX 2 - A local family has made it their mission to help those living with cystic fibrosis and this year -- their annual fundraiser will return to in-person for their "Night of Hope." Laura Bonnell is the...
The Bonnell Foundations Laura Bonnell talks to WWJ’s Greg Bowman about the CF Awareness Film Festival
Listen to the interview:
How America’s Vaccine System Makes People With Health Problems Fight for a Place in Line
Bonnell Foundation featured in the NY Times "Fighting for a place in line" for the covid vaccine. Thanks to Amy Harmon, a NY Times Pulitzer prize winning journalist for telling not only our story, but the story of so many others with chronic and fatal conditions who...
