Guest column: Michigan lawmakers should consult with patients when trying to help patients
A consistent topic of today’s political debate is the cost of health care and how to lower these costs, including drug prices. The debate often focuses on patients with complex health needs, who also face higher bills for their care. What I continue to find puzzling...
Senate Panel Reports Prescription Drug Board Package
Senate Democrats took their first step Wednesday toward the creation of its proposed Prescription Drug Affordability Board by reporting legislation from the Senate Finance, Insurance and Consumer Protection Committee. All three bills (SB 483 Track, SB 484 Trackand SB...
Cystic Fibrosis in Egypt: Advancing Care
By Samya Nasr, MD, Director, Cystic Fibrosis Center It was always thought by the Egyptian Medical Society that CF does not exist in Egypt. One major problem has been the lack of the physicians’ awareness of the disease. Addressing that issue began in 1997, first...
Affordable Care Act Anniversary News Conference
The Bonnell Foundations Laura Bonnell participated in a news conference that was red on WWJ celebrating the anniversary of the Affordable Care Act. Thanks to Rep. Elissa Slotkin and Protect Our Care of Michigan for organizing. Thanks to WLNS, MIRS, WOOD TV, WWJ, and...
Payer Programs – All Sides Speak Up (Including our Laura Bonnell)
ViewPoints: Patients with cystic fibrosis not alone in grappling with payer copay adjustment programmes by Jessica D'Amico Like so many others among the 40,000 Americans living with cystic fibrosis (CF), Molly and Emily Bonnell were waiting for a cure. While the...
WJR community interview with Vanessa Denha
“It’s Your Community” | Sundays 6 to 6:30 a.m. Each Week, WJR‘s “It’s Your Community” focuses on the names, faces, and happenings that are affecting our community. Join your host Vanessa Denha Garmo as she meets with community leaders, experts, and insiders to ask the...
Living with Cystic Fibrosis podcasts featured in Michigan Family Connections Newsletter
Living with Cystic Fibrosis podcasts are available and are for anyone who wants to learn and be inspired, even those not associated with a diagnosis of Cystic Fibrosis. Read the feature on page 2 of the Michigan Family Connections Newsletter here
WJR community interview with Vanessa Denha
“It’s Your Community” | Sundays 6 to 6:30 a.m. Each Week, WJR‘s “It’s Your Community” focuses on the names, faces, and happenings that are affecting our community. Join your host Vanessa Denha Garmo as she meets with community leaders, experts, and insiders to ask the...
WJR Interview with Laura Bonnell
Thanks to Marie Osborne, Steve Courtney and Dave Riger at WJR for doing such a wonderful interview with Laura Bonnell. The group talked about Bonnell's travels to Egypt and all things CF, including the work done by her Foundation.
Former Detroit radio voice takes cystic fibrosis fight to Egypt
By Neal Rubin, Detroit Free Press Laura Bonnell had a translator, because the parents in the room were mostly poor, and it's typically the wealthy in Egypt who are most comfortable with English. When the screen filled with a picture of her daughters, though — her...
