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Media & Press Coverage

The Bonnell Foundation has been featured in newspapers, TV, lifestyle publications and more

Innovation – A Mother’s Story

Breakthrough cures for cystic fibrosis start by promoting science and innovation.




 

Rare but not Alone: 1 in 10 Live with a Rare Disease

By Institute for Patient Access
The 30 million Americans diagnosed with a rare disease represent a large, underserved patient population. Their complex conditions are often poorly understood, and most have no approved treatment. Nevertheless, rare disease patients and advocates are finding purpose, building powerful support systems and working toward better outcomes for the rare disease community. Here are three stories that bear testament to their challenges – and their resilience.
Read the story here

Laura Bonnell’s Night of Hope to defeat cystic fibrosis is Sept. 25

By and David Komer online producer, FOX 2 Detroit

A local family has made it their mission to help those living with cystic fibrosis and this year — their annual fundraiser will return to in-person for their “Night of Hope.”

Laura Bonnell is the founder of the Bonnell Foundation established 11 years ago to help families living with cystic fibrosis – a deadly genetic condition that impacts the lungs and other organs.

How America’s Vaccine System Makes People With Health Problems Fight for a Place in Line

Bonnell Foundation featured in the NY Times
“Fighting for a place in line” for the covid vaccine. Thanks to Amy Harmon, a NY Times Pulitzer prize winning journalist for telling not only our story, but the story of so many others with chronic and fatal conditions who are struggling to get vaccinated. We are honored to be included in this article. So glad our Foundation volunteer, Meg Bauer gets to share her story too.

U of M doctor brings cystic fibrosis awareness to Egypt

Bonnell Foundation featured in the Arab American News

Doctors in Egypt weren’t aware of the prevalence of Cystic Fibrosis (CF) in their country until the efforts of a University of Michigan professor brought the disease to light.
CF is genetic disease that causes chronic and fatal lung infections and interferes with digestion.

Doctors have been testing newborns for CF in the U.S. since the mid-1960s. This isn’t the case in other countries. In fact, some health experts do not acknowledge that the genetic disease exists in their countries.

Dr. Samya Nasr, professor of pediatrics at the University of Michigan Medical Center, returned to her native Egypt to try to convince doctors that cystic fibrosis existed there.

Read the full story here

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