Laura Bonnell Interviewed by WWJ
Our founder, Laura Bonnell, joined WWJ’s Greg Bowman to discuss the upcoming Harvest of Hope Gala on September 20th and to share how advances in science are bringing hope to people living with cystic fibrosis and other rare diseases.
Bonnell Foundation CEO Featured on Fox 2 News Detroit
We’re excited to share that our CEO, Laura Bonnell, was featured on Fox 2 News Detroit to talk about the upcoming Harvest of Hope Gala on Saturday, September 20th. A big thank you to Brandon Hudson and the Fox 2 News team for helping raise awareness about cystic...
Laura Bonnell Profiled in Voyage Michigan
Laura Bonnell sits down with Voyage Michigan to talk about her path to founding the Bonnell Foundation.
Living With Cystic Fibrosis: I’m Laura Bonnell and This Is My Story
Writing in BioMatters, Laura Bonnell shares her experiences as a mother raising children with CF.https://issuu.com/michbio/docs/winter_22_biomatters-e/s/14784240
The Critical Role of Advocacy in the Bio-Industry
Laura Bonnell and others discuss their recent visit to Capitol Hill and the critical importance of advocacy work for Michigan’s life sciences sector. https://www.michbio.org/news/the-critical-role-of-advocacy-in-the-bio-industry
Why We Advocate: The Importance of Access to Efficient, High-Quality Healthcare
Anyone living with a rare disease wants access to care — not just substandard healthcare, but healthcare that will keep them alive and healthy. Sadly, this is often not the case for so many patients. I am Laura Bonnell, the mother of two daughters with cystic...
In Michigan, the RDAC
Representative Jason Morgan reintroduced the Rare Disease Advisory Council (RDAC). See the press release: Morgan Reintroducing Bill Creating Rare Disease Advisory Council - housedems.com
Medical Research in Jeopardy
Laura Bonnell, CEO of The Bonnell Foundation: Living with Cystic Fibrosis, talks with Marie Osborne on WJR radio to discuss how a 15 percent cap on NIH grants will catastrophically impact research and end hope for cures. read more
Rare Disease Advisory Council
The newly constituted Michigan Rare Disease Advisory Council (MI RDAC) met in early October 2024 and began its mandate as an advisory body that provides Michigan’s rare disease community with a stronger voice in state government. Read more
Federal Policies Must Incentivize Rare Disease Drug Development, Not Hinder It
For most of my daughters’ lives, I lived with the reality that any day could be their last. After they were both diagnosed with cystic fibrosis (CF), our lives centered around constant check-ups, testing, and a revolving door of pills, inhalers, and other medications...
