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CF Awareness Month

May is National Cystic Fibrosis Awareness Month in the United States. Join thousands of others across the country to raise awareness of CF and what life is like with the disease that affects more than 30,000 people in the United States. Cystic Fibrosis (CF) affects more than just the lungs. This genetic disease causes constant lung […]

Night of Hope Celebration

MI

Thank you to everyone who supported the Night of Hope! It was a great success! A Virtual Event featuring:Musical artists Jill Jack, Bob Mervak,Ashley Ballou-Bonnema and Carre' Queen Kwong CallawayGuest Speakers Alaina Muckel and father Lou CugliettaWatch the Replay! Enter your name and email address for free access to the full event video!.et_pb_text_2 .wpcf7-response-output { float: right; […]

Webinar: Discrimination and healthcare

Discrimination and healthcare: how it impacts YOU. When: Jun 10, 2021 04:00 PM Eastern Time (US and Canada) We will talk about the ways that policymakers and payers make decisions about whether or not to reimburse you and about covering your treatments. The system being proposed to state and federal policymakers was put forth by […]

Webinar: Breath from Salt with Bijal Trivedi

Just after the WHO declared a global pandemic in March, 2020, Bijal finished writing her first book: Breath from Salt: A Deadly Genetic Disease, a New Era in Science, and the Patients and Families Who Changed Medicine Forever.