Supports and improves the lives of families in the cystic fibrosis community through advocacy, innovative programs, awareness, education, life expanding activities, urgent financial support, and funding critical developments.
Casey McCullough
info@pipersangels.org
833-723-9423
Programs: Urgent Financial Assistance, Meditation & Mindfulness, Breathwork, Care Packages, Mentorship, Support Sessions, Ocean Activity Scholarships, International Aid
Providing a Breather, in the form of a “Wish”, to those battling cystic fibrosis.
Laura Zoweny
laura@takeabreather.net
610-209-8661
Programs: *PA, NJ, MA, NC, DE, FL, IL* – The Take A Breather Foundation provides a “breather,” in the form of a wish, to individuals battling cystic fibrosis (CF). Founded in 2012 as a 501(c)(3) organization, the foundation brings moments of relief, joy, and hope to patients and their families during some of their most challenging times. Each breather offers a meaningful pause from the daily demands of CF, a chance to reset, reconnect, and experience something uplifting when it’s needed most.
Supports children and adults living with cystic fibrosis in the daily struggles and challenges.
Christy Rimrodt
christy@vivianleefoundation.org
503-407-4836
Programs: Support groups, caregiver retreat, financial assistance, activity grants, and a scholarship program.
Advances the wellbeing of people with cystic fibrosis through education, direct support, and opportunities to thrive.
Shawna Gray
shawna@breathestrongcf.org
770-366-8714
Programs: Exercise Grants (national), Critical Needs Assistance (GA only), BreatheStrong+ (national), Bold Enough to Ask, A BreatheStrong CF podcast discusses men’s sexual and reproductive health amongst other adult relational topics
Providing adults with cystic fibrosis (CF) the resources and support they need to thrive.
Pete Proimos
info@filotimofoundation.org
Programs: The Filotimo Foundation provides a wide range of support for adults living with cystic fibrosis, including financial hardship assistance such as help with rent or mortgage payments, utility bills, and food insecurity, as well as medical related support for co pays, medical equipment not covered by insurance, hospital recovery, and transplant needs. The foundation also offers lodging or travel assistance for medical treatment and clinic visits, fertility and family building support including adoption assistance, and gas and transportation support to ensure patients can access the care and community they need.
Accelerates research and drug development for the final 10% of people with cystic fibrosis (CF) that do not benefit from existing CFTR modulator therapies. By providing critical leadership and coordination, Emily’s Entourage drives high-impact research, cultivates multi-stakeholder collaboration, and facilitates information exchange to speed breakthroughs. Our goal is singular: to expedite lifesaving treatments and a cure for the final 10% who are waiting with bated and fading breath.
Emily
admin@emilysentourage.org
484-572-3374
Programs: (worldwide program) Research grant funding, Strategic investments via venture philanthropy, Clinical trial recruitment support via our global Clinical Trial Connect (CTC) patient database
Our mission is to provide life-saving cystic fibrosis therapy vests to underserved patients around the world, ensuring that no one is denied essential care because of financial or geographic barriers.
Rod Spadinger
rod@cfvww.org
808-292-9877
Programs: (worldwide program) CF Vests Worldwide donates therapy vests; Creon, Zenpep, Pertzye enzymes; and CFTR Modulator Therapies (Trikafta) to global CF communities
Our Mission is to empower individuals with cystic fibrosis by providing resources, support, and community connection that inspire hope to live a fulfilling life.
Jillian
Jill@jilliansjaywalkers.org
586-741-3030
Programs: Air Filter Unit Device Grant, Supplemental Grocery Assistance Grant & Nutritional Program
To provide CF care available to US patients to patients in underserved countries around the world.
Bean Corcoran
cfbridgeofhope@gmail.com
203-858-2149
Programs: Visa application assistance, airfare to the US, free CF clinic appointments, all food, housing & travel within the US. medications
Getting others with CF active and pursuing their passions. We also help people with CF who are on the lung transplant journey.
Alexis Smith
alexis@livefearlesslyfoundation.org
910-599-7528
Programs: Grants for activities that help with overall health. Monetary grants for basic needs while on the lung transplant journey.
To be a global resource for the cystic fibrosis community while pursuing a cure through research, education, advocacy, and support.
cfri@cfri.org
650-665-7576
Programs: CFRI’s research programs include funding opportunities to support original CF research projects. Education and support offerings include psychosocial support programs such as counseling assistance and monthly support groups, wellness classes, a national CF conference, community retreats, newsletters, and the CF Community Voices podcast series. CFRI also connects the CF community with patient assistance resources that can help with financial, medical, and legal support needs. In addition, CFRI engages in advocacy and awareness initiatives to support access to care and improve quality of life for those affected by CF.
Empowers people with cystic fibrosis through programs, events, and advocacy that enhance their quality of life, and raise public awareness about CF.
emily@letsrockcf.org
734-341-5867
Programs: Kicks Back program, Bowman Brothers Trade School Scholarship, Boltcast podcast, Free entries to participate in all Rock CF running, cycling and hike events.
