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The Extended
CF Familia

Patient Campaign Video

We know that cystic fibrosis is a progressive disease that significantly impacts patients and their families. We are also very conscious that early identification in any patient is critical to achieving better health outcomes.

Latino Influencer

Medical View

CF Care as Part of Motherhood

Read the story here


Resource Links

Support Group for the Spanish-Speaking CF Community: Second Wednesday of Every Month

Led by Marilyn Calderon, LICSW
The group meets on the second Wednesday of every month from 5:00 to 6:00 pm PT (8:00 to 9:00 pm ET), and addresses the unique issues faced by Hispanic/Latinx individuals and families affected by CF. The group is open to adults with CF as well as family members of adults and children with CF. The group meetings are held in Spanish and facilitated by Marilyn Calderon, LICSW.

To register, click here. Please allow 3-4 hours before the meeting to register.

Sponsored by Vertex Pharmaceuticals, Chiesi USA, Genentech, Viatris, Gilead Sciences, and private donors.

Social Shareables

Spread the word on CF Familia and raise awareness for Latinos living with CF by downloading these social visuals and sharing them on your social media channels.