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The Extended
CF Familia
Educational Video
Latinos with cystic fibrosis (CF) are often misdiagnosed or diagnosed later in life due to rare genetic mutations. Access to early detection can help Latino CF patients to better manage their symptoms and possibly live a fulfilling life.
Campaign Videos
Inspirational Stories
CF Care as Part of Motherhood
Resource Links
Support Group for the Spanish-Speaking CF Community: Second Wednesday of Every Month
Led by Marilyn Calderon, LICSW
The group meets on the second Wednesday of every month from 5:00 to 6:00 pm PT (8:00 to 9:00 pm ET), and addresses the unique issues faced by Hispanic/Latinx individuals and families affected by CF. The group is open to adults with CF as well as family members of adults and children with CF. The group meetings are held in Spanish and facilitated by Marilyn Calderon, LICSW.
To register, click here. Please allow 3-4 hours before the meeting to register.
Sponsored by Vertex Pharmaceuticals, Chiesi USA, Genentech, Viatris, Gilead Sciences, and private donors.
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