We Are
The Extended
CF Familia
Campaign Anthem Video
If you are a Latino living with cystic fibrosis (CF), you are not alone. We Are the Extended CF Familia is here to provide you with information and resources that will help you navigate CF.
Campaign Videos
This Campaign Anthem video amplifies the awareness of Latinos with Cystic Fibrosis.
Inspirational Stories
CF Care as Part of Motherhood
Resource Links
Support Group for the Spanish-Speaking CF Community: Second Wednesday of Every Month
Led by Marilyn Calderon, LICSW
The group meets on the second Wednesday of every month from 5:00 to 6:00 pm PT (8:00 to 9:00 pm ET), and addresses the unique issues faced by Hispanic/Latinx individuals and families affected by CF. The group is open to adults with CF as well as family members of adults and children with CF. The group meetings are held in Spanish and facilitated by Marilyn Calderon, LICSW.
To register, click here. Please allow 3-4 hours before the meeting to register.
Sponsored by Vertex Pharmaceuticals, Chiesi USA, Genentech, Viatris, Gilead Sciences, and private donors.
Blog
- Facing the Diagnosis
- The Art of Caregiving
- Invisible Disability
- Nasal Polyps and Sinus Surgery
- Five tips for integrating school life and Cystic Fibrosis
- Smoking: the potential risks for people with cystic fibrosis
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