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Cystic Fibrosis Advocacy Training & Public Policy Summit

Spotlighting Cystic Fibrosis
A  roadmap for families living with CF
Register today for a collaborative training and summit to spotlight cystic fibrosis (CF) and raise awareness about the disease and the needs of the CF community. “A Roadmap for CF” will bring together leading experts on CF, medical professionals, public policy makers, parents, patients, and caregivers to tackle public policy issues surrounding CF in Michigan and present a training to help the CF community better engage with state lawmakers and key decision makers on the challenges of living with CF and what resources and tools are needed to navigate the disease.

Saturday, January 28, 2017

26455 American Drive, Southfield, MI

10:00 am – 1:00 pm


Simply include your name, title and organization (if any), email and phone number. You will receive a confirmation email after you have registered.

    10:00 am Welcome & Introductions

    10:15 am Legislative 101 & CF Public Policy Update
    Gain insights in Michigan’s legislative process, key legislators and standing committees, how to effectively build relationships.

    11:15 am Advocacy 101
    Learn how to be an effective advocate and how to establish yourself or your organization as the “go to” on CF among public policy leaders. Speakers: Tiffany Nagle, Cullari Communications Global and Laura Bonnell, The Bonnell Foundation

    12:15 pm Lunch & Closing Remarks

    Additional details regarding the summit will be sent two weeks prior to the event. There is no cost to attend, but space is limited so please register early. Refreshments will be provided.

    For additional information, please contact Laura Bonnell at laura@thebonnellfoundation.org

    The summit is hosted by The Bonnell Foundation and sponsored by Vertex.