Advocating For CF
See who we’ve met during our travels while advocating for Cystic Fibrosis
National Cystic Fibrosis Awareness Month in May encourages education in the battle against a lung disease affecting more than 30,000 people in the United States.
Cystic Fibrosis (CF) affects more than just the lungs. This genetic disease causes constant lung infections, but it also impacts other organs in the body where mucus builds up.
While there is still no cure for CF, advancements in treatment have made it possible for those with CF to live much longer than ever before. However, they live under the risk of infection and health problems due to CF. A cure is still needed.
Ways to Help
The Bonnell Foundation: Living with Cystic Fibrosis and Rock CF organized the CF Task Force in January of 2017 to make certain that we were raising awareness as a CF community. Our hope since then has been that lawmakers will use us as a resource when making decisions that will impact people with CF and even people with other chronic illnesses. We meet periodically to discuss our concerns (healthcare, awareness, preexisting conditions and more). We encourage you to get involved. Please shoot us an email at: firstname.lastname@example.org.
“I am glad to be part of the CF Task Force because we have to stick together as a CF community and raise awareness to local legislators and anyone who will listen.” — Laura Hartson
Become an advocate for CF
You can join The Bonnell Foundation to speak out and take action on behalf of Cystic Fibrosis. Fill out our Volunteer Form; it’s a great place to get started, and we’ll contact you with opportunities to help the cause!