SYMDEKO Gives Hope to Almost 14,000 People with CF
New FDA approved drug from Vertex treats the underlying cause of cystic fibrosis in people ages 12 and older like Jessica Franklin of Maryland with certain mutations in the CFTR gene. Click the play buttons below to hear Laura Bonnell speak with Jessica about how this new medicine will affect her.
Help Us Help Others
Please help us help others with day to day expenses of living with cystic fibrosis by donating to the BonnelFoundation.org. Click the play button to hear Laura Bonnell speak about the how the Bonnell Foundation helps those living with cystic fibrosis.
Some of our favorite ways to spread awareness include:
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The Bonnell Foundation is your Roadmap to CF.
Our mission is to help educate parents and find a cure for Cystic Fibrosis, so that one day no CF parent will experience the pain and loss of losing a child to this disease. The purpose of The Bonnell Foundation is to provide tools to navigate the difficulties of living with CF. We strive to connect families with resources through their CF journey. With our website, Roadmap to CF baskets, medical and academic scholarships, we hope to equip families with a roadmap to guide their way. Learn more about our organization
Living Life With Cystic Fibrosis
A Day With Cystic Fibrosis
Living With Cystic Fibrosis (Pt. 2)