Live • Breath • Inspire Podcast
The Bonnell Foundation’s first podcast is with Dr. Francis Collins, Director of the National Institute of Health (NIH). He discovered the gene that causes cystic fibrosis in 1989 at the the University of Michigan in cooperation with a handful of other scientists. Dr. Collins recently received the Warren Alpert Foundation prize. The second part of this podcast is with Emily, Co-found of Emily’s Entourage. She is 33 years old and has cystic fibrosis. With the help of her friend she got 5 broadway actors/singers to make a video about CF. Hear their story.
SYMDEKO Gives Hope to Almost 14,000 People with CF
New FDA approved drug from Vertex treats the underlying cause of cystic fibrosis in people ages 12 and older like Jessica Franklin of Maryland with certain mutations in the CFTR gene. Click the play buttons below to hear Laura Bonnell speak with Jessica about how this new medicine will affect her.
Help Us Help Others
Please help us help others with day to day expenses of living with cystic fibrosis by donating to the BonnelFoundation.org. Click the play button to hear Laura Bonnell speak about the how the Bonnell Foundation helps those living with cystic fibrosis.
Some of our favorite ways to spread awareness include:
Blog • Tweet • Facebook • Instagram • Tell Friends • Letter to the Editor
Remember to share your CF story below.
The Bonnell Foundation is your Roadmap to CF.
Our mission is to help educate parents and find a cure for Cystic Fibrosis, so that one day no CF parent will experience the pain and loss of losing a child to this disease. The purpose of The Bonnell Foundation is to provide tools to navigate the difficulties of living with CF. We strive to connect families with resources through their CF journey. With our website, Roadmap to CF baskets, medical and academic scholarships, we hope to equip families with a roadmap to guide their way. Learn more about our organization
Living Life With Cystic Fibrosis
A Day With Cystic Fibrosis
Living With Cystic Fibrosis (Pt. 2)