We Are
The Extended
CF Familia
Testimonials Video
Latinos living with CF share their stories to create a community of support for other Latinos with this disease. Here, you’ll also learn about caregivers’ experiences and how they have found strengths and resilience while also fighting against cystic fibrosis.
We Are the Extended CF Familia and we are here to hear your voice!
Campaign Videos
This Campaign Anthem video amplifies the awareness of Latinos with Cystic Fibrosis.
Inspirational Stories
CF Care as Part of Motherhood
Resource Links
Support Group for the Spanish-Speaking CF Community: Second Wednesday of Every Month
Led by Marilyn Calderon, LICSW
The group meets on the second Wednesday of every month from 5:00 to 6:00 pm PT (8:00 to 9:00 pm ET), and addresses the unique issues faced by Hispanic/Latinx individuals and families affected by CF. The group is open to adults with CF as well as family members of adults and children with CF. The group meetings are held in Spanish and facilitated by Marilyn Calderon, LICSW.
To register, click here. Please allow 3-4 hours before the meeting to register.
Sponsored by Vertex Pharmaceuticals, Chiesi USA, Genentech, Viatris, Gilead Sciences, and private donors.
Blog
- Facing the Diagnosis
- The Art of Caregiving
- Invisible Disability
- Nasal Polyps and Sinus Surgery
- Five tips for integrating school life and Cystic Fibrosis
- Smoking: the potential risks for people with cystic fibrosis
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