Webinar: Manage Stress and Promote Self Care
2021-04-21 19:00 (America/Detroit) | MI
Zoom Webinar

CF Awareness Film Festival: Call for Entries
2021-05-01 - 2021-05-21 | MI
May is Cystic Fibrosis (CF) Awareness Month! The Bonnell Foundation is hosting the first CF Awareness Film Festival.

CF Awareness Film Festival: Voting
2021-05-24 | MI

Webinar: Discrimination and healthcare
2021-06-10 16:00 | MI
Discrimination and healthcare: how it impacts YOU.
When: Jun 10, 2021 04:00 PM Eastern Time (US and Canada)
We will talk about the ways that policymakers and payers make decisions about whether or not to reimburse you and about covering your treatments. The system being proposed to state and federal policymakers was put forth by a self-appointed group that uses Quality Adjusted Life Years (QALY). The process for valuing treatments using QALYs puts a lower value on lives lived with a disability or chronic disease. We will give you the information you need to protect yourself, your children and others facing these discriminatory practices. We will also cover the existing civil and disability rights laws that have created precedent against using QALYs in public health programs, as well as threats at the state and federal level for incorporating the use of QALYs.
Register in advance for this webinar:
https://us02web.zoom.us/webinar/register/WN_IrNZxnf4QAu-6ejmY4Aiiw
Laura Bonnell Moderating / Webinar Speakers:

Sara van Geertruyden
Executive Director @Partnership to Improve Patient Care (PIPC)
Sara Traigle van Geertruyden is the Executive Director of the Partnership to Improve Patient Care (PIPC), which is also chaired by former Congressman Tony Coelho, original author of the Americans with Disabilities Act. Sara joined PIPC in January 2011, and also serves as a Partner at the firm Thorn Run Partners. Her work is focused on policies to advance a patient-centered health system, from patient engagement in research to driving outcomes that matter to patients in healthcare payment and delivery. Sara is a healthcare and welfare policy expert with over 25 years of experience, beginning her career on Capitol Hill working for former Senator John Breaux (D-LA) from 1996-2003, then as an attorney at the law firm Patton Boggs where she practiced in the public policy group handling regulatory and legislative issues related to health care, welfare, and appropriations for clients. Sara is currently also serving on the Board of Directors for the Center for Adoption Support and Education

Beth Vanstone
Director @Cystic Fibrosis Advocacy Team, CF Get Loud
Beth Vanstone is a Director with the Cystic Fibrosis Advocacy Team, CF Get Loud. She is the mother of two daughters, the youngest who lives with Cystic Fibrosis. Beth has advocated on behalf of the Rare Disease Community as well as the Cystic Fibrosis Community for the past 19 years. In 2012 her and her then 11 yr old daughter successfully lobbied the Ontario Provincial Government to include the first gene modulator Kalydeco on the provincial formulary. CFGL and CF patients across Canada have been advocating to have recent adverse changes to the Regulatory Patented Medicine Review Board rescinded. She continues to work alongside the Canadian Cystic Fibrosis Community to have Orkambi, expanded labeling for Kalydeco and Trikafta approved and funded in provinces across Canada.

Webinar: How to Apply for Education Scholarships
2022-01-27 19:00 | MI
Click to sign up for a Zoom webinar on how to apply for scholarships.

Webinar: Breath from Salt with Bijal Trivedi
2022-05-04 19:00 | MI
To register for this Zoom event, click https://us02web.zoom.us/webinar/register/WN_tNW2b0_8Sxai7NOYgcbkDQ
Bijal P. Trivedi is an award-winning journalist specializing in longform narrative features about biology, medicine, and health. She currently works as the senior science editor for National Geographic. Just after the WHO declared a global pandemic in March, 2020, Bijal finished writing her first book: Breath from Salt: A Deadly Genetic Disease, a New Era in Science, and the Patients and Families Who Changed Medicine Forever (September, 2020). Bill Gates listed Breath from Salt as one of his top five book picks for winter 2020. The book was also longlisted for the 2021 PEN/E.O. Wilson Literary Science Writing Award.
Bijal’s writing has been featured in The Best American Science and Nature Writing 2012, National Geographic, The New York Times, Scientific American, Wired, Science, Nature, The Economist, Discover, and New Scientist.

Michele Ciancimino talks CF nutrition for the patient and caregiver
2022-05-12 19:00 | MI
Nutrition is an critical part of anyone’s life, but especially the CF community. It can also be a complicated aspect. When CF was first recognized in 1938 patients were told to eat a low fat diet because they couldn’t digest food, but then doctors realized patients were too thin and not healthy. A high fat diet was recommended. But now we’re seeing a variation of vegetarian and Vegan in the CF world. And what does a high fat diet mean to the caregiver? A lot of overweight caregivers? We have fun and get serious as we tackle this discussion.
Register in advance for this webinar:https://us02web.zoom.us/webinar/register/WN_gSerMDhIRx2YYE9v-suhtQ
Speakers
Michele Ciancimino
Certified Holistic Health Coach/ Certified Fitness Nutrition Specialist @Goodness Girl
We all want to be healthy, but so many of us struggle to figure out what to eat, how much and when. Most give up without ever reaching their health goals. Michele Ciancimino is an Integrative Nutrition Certified Holistic Health Coach. Her personalized approach to nutrition relieves the overwhelm and confusion by providing a nutrition and lifestyle plan uniquely designed for the needs of each individual. Whether you are trying to achieve or maintain a healthy weight, improve digestion, balance hormones or blood sugar, or you just want to learn how and what to eat to support the well-being of your unique body, Michele’s personalized lifestyle coaching will move you from having knowledge to actually making your better choices more often, so that you can enjoy continued success on your path to better health.
Laura Bonnell
Founder, The Bonnell Foundation: Living with cystic fibrosis @The Bonnell Foundation: Living with cystic fibrosis
Laura started the Foundation in 2010 because she saw a need to help families both financially and with mentorship. thebonnellfoundation.org

St. Patrick's Day Fundraiser
2023-03-03 19:00 - 2023-03-04 01:00 | Polish Sea League, 2601 Edwin St, Hamtramck, MI, 48212, United States
Cost: $10 at the door
A party to celebrate St. Patrick’s Day and The Bonnell Foundation!
Live Irish music thanks to the band, Odd Enough. Ten bucks at the door! Very affordable and your donations will help our programs.

Education Day
2024-05-11 09:00 - 11:00 | Meillie Coffee, 22965 Woodward Ave, Ferndale, MI, 48220
Meet and Greet with CF parents
Learn about our new mentoring program. Children’s Hospital Nurse Wendi Tague and Social Worker Claire Haglund will be with us. Enjoy coffee, yummy gourmet treats and friendship!

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Education Day – Saturday, May 3rd
2025-05-03 11:00 - 14:00 | Next Step Studio & Gallery, 530 Hilton Rd., Ferndale, MI, 48220, United States
Join us for a fun, family-friendly meet and greet CF Community gathering / CF Education Day at the Next Step Studio & Gallery in Ferndale, MI. Hot lunch (Thai food) included. This indoor/outdoor gallery experience is perfect for all ages, with scheduled arrival and departure times for safety. We’ll have a family photographer on hand to take your free photos. A $5 registration fee per family ensures your spot. Click here to download a flyer.

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Education Day Gathering
2026-04-18 11:00 - 13:30 | Next Space Gallery, 530 Hilton Road, Ferndale, MI, 48220, United States
Documentary Premiere & Caregiver Education Day
When: Saturday, April 18Time: 11:00 AM – 1:30 PM
Cost: Free to attendPlease Register by April 13 so we can plan for food.
Location:Next Step Studio and GalleryFerndalewww.nextstepstudio.com
This special event will include:• A live podcast recording (last year it was such a hit we’re doing it again)• Community discussion and caregiver-focused education• Lunch• The premiere of our documentary, Embracing Egypt: Connecting CF Families Across the Globe. Dr. Samya Nasr will be with us for the premiere.
The film highlights the global challenges families face and the power of connection and advocacy in changing lives. It’s an opportunity to learn, reflect, and strengthen our caregiver community together.
You can view (and share) the trailer here:https://youtu.be/RYjlB25Cr9Y
Caregivers do so much every single day. This event is designed to support, educate, and celebrate you.We would love to see you there.

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Sweet 16 Gala
2026-09-19 18:30 - 23:00 | Laurel Manor Banquet & Conference Center, 39000 Schoolcraft Road, Livonia, MI, United States
Activity: live podcast for all attendees to take part in silent and live auction along with a raffle
Live music and great food
Speakers (to be announced) but they will be siblings of people with CF and Aunts or Uncles of people with CF.
