Roadmap to CF: The Bonnell Foundation

"For The Love of Marge"
2018-03-03 18:30 - 23:00 (America/Detroit) | St. Mary’s Cultural and Event Center, 18100 Merriman Road, Livonia, MI, 48152, United States
Margaret Carmona was a Cystic Fibrosis patient dedicated to assisting others. She served the Metro-Detroit chapter of the Cystic Fibrosis Foundation raising money to help in the battle against CF. For the Love of Marge was Margie’s idea to gather with friends and family in a wedding type environment and raise funds to help others. Margie lost her battle to the disease in 2006 but her dream now lives on with this family fun event that helps to warm the winter months. Started in 2007, this event showcases Margie’s spirit of love and friendship as we gather to have fun, enjoy each other’s company and raise funds for The Bonnell Foundation. The Bonnell Foundation continues to expand its outreach to Cystic Fibrosis families by doubling the number of Margaret Carmona academic scholarships, continuing its generous support of The Cystic Fibrosis Foundation and dramatically increasing its Angel Fund which covers basic needs often not covered by other services. As we grow so does our ability to touch lives and families nationwide. We couldn’t do it without your help, thank you. Please join us in celebrating.

Drag Queen Bingo
2018-05-06 13:30 - 16:00 | Drag Queen Bingo, 600 S Washington Ave. (next to Pronto's), Royal Oak, MI, 48067, United States

2018 Margaret Carmona Classic
2018-09-14 09:30 - 19:30 | Huntmore Golf Club, 9595 Estancia Rd, Brighton, MI, 48114, United States
Join us once again as we invite you to the 18th annual Margaret Carmona Classic which will take place Friday, September 14, 2018. Our friends at Huntmore Golf Club* turn the entire course over to our fundraising efforts with an 11:00 a.m. shotgun start, lunch and steak dinner.
As many of you know, last year “Big” Lee Carmona (aka Pa) passed suddenly. This devastating loss has strengthened our resolve to help families enjoy the time they have together. We will be paying tribute to Pa, with a special video presentation. As we honor Pa and Margie’s commitment to helping others we hope that you will please join us. The golf outing was one of Pa’s (and Margie’s) favorite days. We are convinced it will be one of yours as well.
The Bonnell Foundation was founded to specifically assist families dealing with the fight against CF. Medications, doctor visits and education are all financial hurdles families with CF face. Our Margaret Carmona Academic Scholarship assists CF students across our country to achieve their dream of attending college. Our Lung Transplant Fund has established itself as a great resource to families who face the more difficult challenge of having a lung transplant. It is this direct assistance to families that was Margie’s dream and with your generosity it has become reality.
The cost of the outing is $150 per golfer (fair market tax deduction=$75) and there are additional sponsorship opportunities. The cost includes 18 holes with a cart, lunch, and dinner reception with silent auction and raffle. Registration starts at 9:30 a.m. with a shotgun start at 11:00
*Huntmore Golf Club is located on 9595 Estancia Rd, Brighton, MI. Phone 810-225-4498. For complete directions go to www.huntmoregolfglub.com/contact/directions
PARTICIPATION OPPORTUNITIES
Eagle Sponsor – $3000 (tax deductible amount $2400)
2 foursomes, primary program recognition, hole sponsor sign and golfer gift.
Birdie Sponsor – $1200 (tax deductible amount $900)
Foursome, program recognition, hole sponsor sign and golfer gift.
Par Sponsor – $300 (tax deductible amount $300)
Hole sign, banner and program recognition.
Foursome – $600 (tax deductible amount $300)
Golf for four. Lunch and dinner. Golfer gift.
Individual Golfer – $150 (tax deductible amount $75)
Golf, lunch and dinner. Golfer gift.
All donors will be recognized during the dinner program. The Bonnell Foundation is a 501c3 nonprofit charity. Donations are tax-deductible at fair market value.
REGISTRATION
How to reserve your spot in the golf outing that puts the FUN in fundraising?

Simply email your R.S.V.P. to satch24@sbcglobal.net and pay the day of. The Bonnell Foundatiom takes all major credit cards and checks.
Mail in your check and prepay. Please mail checks to:
M.C.C.
887 Lakeview Ave.
Birmingham, MI 48009

Please make checks payable to: The Bonnell Foundation

Because of health risks to people with cystic fibrosis (CF), individuals with CF who have had confirmed positive sputum culture for Burkholderia cepacia complex shall not attend events sponsored by the Bonnell Foundation. This policy is necessary because B. cepacia is contagious to individuals with CF. B. cepacia can be transmitted through casual contact or close proximity with infected individuals. B. cepacia infection in a person with CF can cause serious respiratory illness and, in some patients, may result in rapid decline in lung function, possibly leading to death. While this policy should reduce the risk of B. cepacia cross infection, there still might still be some individuals with B. cepacia in attendance. B. cepacia is not a known health risk to individuals without CF who are otherwise healthy.

Five Feet Apart
2019-03-14 19:00 - 21:00 | Emagine Theatre Royal Oak, 200 N. Main Street, Royal Oak, MI, 48067, United States

Eat at MOD Pizza (date change)
2019-05-10 17:00 - 21:00 | MOD Pizza, 16258 Fort St., Southgate, MI, 48195, United States
Eat at MOD Pizza, 16258 Fort St. in Southgate and 20% of your total bill will be donated to The Bonnell Foundation.
Download the flyer Download and print voucher

Seminar: Children's Special Health Care
2019-05-30 13:00 - 15:00 | MI
Please join us on Thursday, May 30th from 1:00 until 3:00pm at Music Town (2301 Woodward Avenue) across from Comerica Park. It’s on the second floor of Hockey Town.
Representatives from Children’s Special Health Care services will be there.

Please RSVP (* = required info)

First Name *

Last Name *

Your Email *

Cell Number

What is your CF connection? (Self, parent, etc.)

Night of Hope
2019-09-28 18:00 - 23:00 | Laurel Manor Banquet & Conference Center, 39000 Schoolcraft Road, Livonia, MI, United States
Saturday, September 28th at 6pm
Laurel Manor Banquet & Conference Center39000 Schoolcraft Road, Livonia

Melissa Yeager, CF Mom

Dylan Mortimer, Artist

Kevf, Entertainer

98.7 The Breeze midday hostKim Adams, Emcee

An evening of friends, fun, strolling dinner and music! We’re honored to have two dynamic speakers. Melissa Yeager’s daughter Claire Wineland inspired the movie Five Feet Apart and the CF community from California to Michigan before losing her battle with cystic fibrosis. Artist Dylan Mortimer has a beautiful story to tell after recently getting his second double lung transplant. You’ll be inspired by both speakers. For your entertainment Kevf will jam out a few tunes. He is an up and coming star who happens to have cystic fibrosis.
A silent auction will be followed by a live auction with Emcee, Midday host Kim Adams, 98.7 The Breeze.

CF Attendance:Adult persons with CF should avoid being at indoor events together because of the possible cross contamination of lung bacteria. If you find it necessary to be in the same room cover your cough, wash hands/hand sanitizer – and do not shake hands. It’s preferable that you stay a good distance apart. Persons with B. Cepacia or other bacteria that are drug resistant should not attend. Thanks for looking out for one another.

Sponsorship and Tickets

Become a SponsorOrder Tickets

Sponsors receive event tickets plus recognition in event materials. Select a sponsor level, or download and print this form to sponsor by mail.

Platinum Level Sponsor, $5,000
Includes premium company name / logo recognition plus eight tickets.

Gold Level Sponsor, $2,500
Includes company name / logo recognition plus four tickets.

Silver Level Sponsor, $1,500
Includes company name / logo recognition plus two tickets.

Event Sponsor, $500
Includes name recognition plus two tickets.

Team Captain Ticket, $125
Form a team of ten guests and get a free ticket. Or download and print this form to order by mail.

Event Ticket, $125
Join us for an evening of inspiration and entertainment.

Platinum Level Sponsor, $5,000

Gold Level Sponsor, $2,500
Silver Level Sponsor, $1,500
Event Sponsor, $500
Team Captain Ticket, $125
Event Ticket, $125
Printable sponsorship form (PDF)

Thank you to our Night of Hope Sponsors

Dominic and Molly Ferrante

Scott Morrison

John O’Brien Family

Thank you to our Night of Hope Donors

Pure Life Day Spa

Lois TeicherScupltor

Lillian and Mark Schostak

Leigh DavidsonInterior Designer

Kelly McCarty

The Popped Kernel

Marcia TournayArtist

Dylan MortimerArtist

Johan and Anna de Nysschen

Great Lakes Pillow CompanyAnne O’Keefe

Nancy Mastantuono

Gourmet Savory

Lori Tisko

Margie PatchetArtist

David and Lori Morrison

John and Kob Bonnell

Natalie Wicks

Geri Aprile

Feras Shammami

Julie AlbaneseDecorative Artist

Troy and Deb Wood

Marylynne Erskine

Henry Ford Breast ImagingMammography Department, FairlaneLisa Cooper

Purple Sky Jewels

14th Annual "For the Love of Marge" Event
2020-03-07 18:30 - 23:30 | St. Mary’s Cultural and Event Center, 18100 Merriman Road, Livonia, MI, 48152, United States

CF Awareness Month
2020-05-01 - 2020-05-31 | MI
May is National Cystic Fibrosis Awareness Month in the United States. Join thousands of others across the country to raise awareness of CF and what life is like with the disease that affects more than 30,000 people in the United States.
Cystic Fibrosis (CF) affects more than just the lungs. This genetic disease causes constant lung infections, but it also impacts other organs in the body where mucus builds up.
While there is still no cure for CF, advancements in treatment have made it possible for those with CF to live much longer than ever before. However, they live under the risk of infection and health problems due to CF. A cure is still needed.
Attend an event near you this month. Whether it’s a fundraiser or an informational clinic, every opportunity to help eliminate CF will increase the quality of life for those who born with it.

Night of Hope Celebration
2020-09-26 19:00 - 20:30 | MI, United States
Thank you to everyone who supported the Night of Hope! It was a great success!
A Virtual Event featuring:Musical artists Jill Jack, Bob Mervak,Ashley Ballou-Bonnema and Carre’ Queen Kwong CallawayGuest Speakers Alaina Muckel and father Lou Cuglietta

Watch the Replay!
Enter your name and email address for free access to the full event video!

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Photo Gallery
Just Added! Take a look behind the scenes of the virtual event.

Thank you to our Night of Hope Sponsors

Tom and Lori Tisko

Ben and Yanny Go andThe Oakland Men’s Conference

Ron and Katherine Francek

Webinar: Manage Stress and Promote Self Care
2021-04-21 19:00 | MI
Zoom Webinar

CF Awareness Film Festival: Call for Entries
2021-05-01 - 2021-05-21 | MI
May is Cystic Fibrosis (CF) Awareness Month! The Bonnell Foundation is hosting the first CF Awareness Film Festival.

CF Awareness Film Festival: Voting
2021-05-24 | MI

Webinar: Discrimination and healthcare
2021-06-10 16:00 | MI
Discrimination and healthcare: how it impacts YOU.
When: Jun 10, 2021 04:00 PM Eastern Time (US and Canada)
We will talk about the ways that policymakers and payers make decisions about whether or not to reimburse you and about covering your treatments. The system being proposed to state and federal policymakers was put forth by a self-appointed group that uses Quality Adjusted Life Years (QALY). The process for valuing treatments using QALYs puts a lower value on lives lived with a disability or chronic disease. We will give you the information you need to protect yourself, your children and others facing these discriminatory practices. We will also cover the existing civil and disability rights laws that have created precedent against using QALYs in public health programs, as well as threats at the state and federal level for incorporating the use of QALYs.
Register in advance for this webinar:
https://us02web.zoom.us/webinar/register/WN_IrNZxnf4QAu-6ejmY4Aiiw
Laura Bonnell Moderating / Webinar Speakers:

Sara van Geertruyden
Executive Director @Partnership to Improve Patient Care (PIPC)
Sara Traigle van Geertruyden is the Executive Director of the Partnership to Improve Patient Care (PIPC), which is also chaired by former Congressman Tony Coelho, original author of the Americans with Disabilities Act. Sara joined PIPC in January 2011, and also serves as a Partner at the firm Thorn Run Partners. Her work is focused on policies to advance a patient-centered health system, from patient engagement in research to driving outcomes that matter to patients in healthcare payment and delivery. Sara is a healthcare and welfare policy expert with over 25 years of experience, beginning her career on Capitol Hill working for former Senator John Breaux (D-LA) from 1996-2003, then as an attorney at the law firm Patton Boggs where she practiced in the public policy group handling regulatory and legislative issues related to health care, welfare, and appropriations for clients. Sara is currently also serving on the Board of Directors for the Center for Adoption Support and Education

Beth Vanstone
Director @Cystic Fibrosis Advocacy Team, CF Get Loud
Beth Vanstone is a Director with the Cystic Fibrosis Advocacy Team, CF Get Loud. She is the mother of two daughters, the youngest who lives with Cystic Fibrosis. Beth has advocated on behalf of the Rare Disease Community as well as the Cystic Fibrosis Community for the past 19 years. In 2012 her and her then 11 yr old daughter successfully lobbied the Ontario Provincial Government to include the first gene modulator Kalydeco on the provincial formulary. CFGL and CF patients across Canada have been advocating to have recent adverse changes to the Regulatory Patented Medicine Review Board rescinded. She continues to work alongside the Canadian Cystic Fibrosis Community to have Orkambi, expanded labeling for Kalydeco and Trikafta approved and funded in provinces across Canada.

Webinar: How to Apply for Education Scholarships
2022-01-27 19:00 | MI
Click to sign up for a Zoom webinar on how to apply for scholarships.

Webinar: Breath from Salt with Bijal Trivedi
2022-05-04 19:00 | MI
To register for this Zoom event, click https://us02web.zoom.us/webinar/register/WN_tNW2b0_8Sxai7NOYgcbkDQ
Bijal P. Trivedi is an award-winning journalist specializing in longform narrative features about biology, medicine, and health. She currently works as the senior science editor for National Geographic. Just after the WHO declared a global pandemic in March, 2020, Bijal finished writing her first book: Breath from Salt: A Deadly Genetic Disease, a New Era in Science, and the Patients and Families Who Changed Medicine Forever (September, 2020). Bill Gates listed Breath from Salt as one of his top five book picks for winter 2020. The book was also longlisted for the 2021 PEN/E.O. Wilson Literary Science Writing Award.
Bijal’s writing has been featured in The Best American Science and Nature Writing 2012, National Geographic, The New York Times, Scientific American, Wired, Science, Nature, The Economist, Discover, and New Scientist.

Michele Ciancimino talks CF nutrition for the patient and caregiver
2022-05-12 19:00 | MI
Nutrition is an critical part of anyone’s life, but especially the CF community. It can also be a complicated aspect. When CF was first recognized in 1938 patients were told to eat a low fat diet because they couldn’t digest food, but then doctors realized patients were too thin and not healthy. A high fat diet was recommended. But now we’re seeing a variation of vegetarian and Vegan in the CF world. And what does a high fat diet mean to the caregiver? A lot of overweight caregivers? We have fun and get serious as we tackle this discussion.
Register in advance for this webinar:https://us02web.zoom.us/webinar/register/WN_gSerMDhIRx2YYE9v-suhtQ
Speakers
Michele Ciancimino
Certified Holistic Health Coach/ Certified Fitness Nutrition Specialist @Goodness Girl
We all want to be healthy, but so many of us struggle to figure out what to eat, how much and when. Most give up without ever reaching their health goals. Michele Ciancimino is an Integrative Nutrition Certified Holistic Health Coach. Her personalized approach to nutrition relieves the overwhelm and confusion by providing a nutrition and lifestyle plan uniquely designed for the needs of each individual. Whether you are trying to achieve or maintain a healthy weight, improve digestion, balance hormones or blood sugar, or you just want to learn how and what to eat to support the well-being of your unique body, Michele’s personalized lifestyle coaching will move you from having knowledge to actually making your better choices more often, so that you can enjoy continued success on your path to better health.
Laura Bonnell
Founder, The Bonnell Foundation: Living with cystic fibrosis @The Bonnell Foundation: Living with cystic fibrosis
Laura started the Foundation in 2010 because she saw a need to help families both financially and with mentorship. thebonnellfoundation.org

St. Patrick's Day Fundraiser
2023-03-03 19:00 - 2023-03-04 01:00 | Polish Sea League, 2601 Edwin St, Hamtramck, MI, 48212, United States
Cost: $10 at the door
A party to celebrate St. Patrick’s Day and The Bonnell Foundation!
Live Irish music thanks to the band, Odd Enough. Ten bucks at the door! Very affordable and your donations will help our programs.

Education Day
2024-05-11 09:00 - 11:00 | Meillie Coffee, 22965 Woodward Ave, Ferndale, MI, 48220
Meet and Greet with CF parents
Learn about our new mentoring program. Children’s Hospital Nurse Wendi Tague and Social Worker Claire Haglund will be with us. Enjoy coffee, yummy gourmet treats and friendship!

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Education Day – Saturday, May 3rd
2025-05-03 11:00 - 14:00 | Next Step Studio & Gallery, 530 Hilton Rd., Ferndale, MI, 48220, United States
Join us for a fun, family-friendly meet and greet CF Community gathering / CF Education Day at the Next Step Studio & Gallery in Ferndale, MI. Hot lunch (Thai food) included. This indoor/outdoor gallery experience is perfect for all ages, with scheduled arrival and departure times for safety. We’ll have a family photographer on hand to take your free photos. A $5 registration fee per family ensures your spot. Click here to download a flyer.

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Education Day Gathering
2026-04-18 11:00 - 13:30 | Next Space Gallery, 530 Hilton Road, Ferndale, MI, 48220, United States
Documentary Premiere & Caregiver Education Day
When: Saturday, April 18Time: 11:00 AM – 1:30 PM
Cost: Free to attendPlease Register by April 13 so we can plan for food.
Location:Next Step Studio and GalleryFerndalewww.nextstepstudio.com
This special event will include:• A live podcast recording (last year it was such a hit we’re doing it again)• Community discussion and caregiver-focused education• Lunch• The premiere of our documentary, Embracing Egypt: Connecting CF Families Across the Globe. Dr. Samya Nasr will be with us for the premiere.
The film highlights the global challenges families face and the power of connection and advocacy in changing lives. It’s an opportunity to learn, reflect, and strengthen our caregiver community together.
You can view (and share) the trailer here:https://youtu.be/RYjlB25Cr9Y
Caregivers do so much every single day. This event is designed to support, educate, and celebrate you.We would love to see you there.

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Sweet 16 Gala
2026-09-19 18:30 - 23:00 | Laurel Manor Banquet & Conference Center, 39000 Schoolcraft Road, Livonia, MI, United States
Activity: live podcast for all attendees to take part in silent and live auction along with a raffle
Live music and great food
Speakers (to be announced) but they will be siblings of people with CF and Aunts or Uncles of people with CF.
