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May 2021

CF Awareness Film Festival: Voting

May 24, 2021 - May 31, 2021

May is Cystic Fibrosis (CF) Awareness Month! The Bonnell Foundation is hosting the first CF Awareness Film Festival.

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June 2021

Webinar: Discrimination and healthcare

June 10, 2021 @ 4:00 pm

Discrimination and healthcare: how it impacts YOU. When: Jun 10, 2021 04:00 PM Eastern Time (US and Canada) We will talk about the ways that policymakers and payers make decisions about whether or not to reimburse you and about covering your treatments. The system being proposed to state and federal policymakers was put forth by a self-appointed group that uses Quality Adjusted Life Years (QALY). The process for valuing treatments using QALYs puts a lower value on lives lived with…

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January 2022

Webinar: How to Apply for Education Scholarships

January 27 @ 7:00 pm

Click to sign up for a Zoom webinar on how to apply for scholarships.

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May 2022

Webinar: Breath from Salt with Bijal Trivedi

May 4 @ 7:00 pm

Just after the WHO declared a global pandemic in March, 2020, Bijal finished writing her first book: Breath from Salt: A Deadly Genetic Disease, a New Era in Science, and the Patients and Families Who Changed Medicine Forever.

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Michele Ciancimino talks CF nutrition for the patient and caregiver

May 12 @ 7:00 pm

Nutrition is an critical part of anyone's life, but especially the CF community. It can also be a complicated aspect. We have fun and get serious as we tackle this discussion.

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