BEGIN:VCALENDAR VERSION:2.0 PRODID:-//Roadmap to CF: The Bonnell Foundation - ECPv6.17.3.1//NONSGML v1.0//EN CALSCALE:GREGORIAN METHOD:PUBLISH X-ORIGINAL-URL:https://thebonnellfoundation.org X-WR-CALDESC:Events for Roadmap to CF: The Bonnell Foundation REFRESH-INTERVAL;VALUE=DURATION:PT1H X-Robots-Tag:noindex X-PUBLISHED-TTL:PT1H BEGIN:VTIMEZONE TZID:America/Detroit BEGIN:DAYLIGHT TZOFFSETFROM:-0500 TZOFFSETTO:-0400 TZNAME:EDT DTSTART:20180311T070000 END:DAYLIGHT BEGIN:STANDARD TZOFFSETFROM:-0400 TZOFFSETTO:-0500 TZNAME:EST DTSTART:20181104T060000 END:STANDARD BEGIN:DAYLIGHT TZOFFSETFROM:-0500 TZOFFSETTO:-0400 TZNAME:EDT DTSTART:20190310T070000 END:DAYLIGHT BEGIN:STANDARD TZOFFSETFROM:-0400 TZOFFSETTO:-0500 TZNAME:EST DTSTART:20191103T060000 END:STANDARD BEGIN:DAYLIGHT TZOFFSETFROM:-0500 TZOFFSETTO:-0400 TZNAME:EDT DTSTART:20200308T070000 END:DAYLIGHT BEGIN:STANDARD TZOFFSETFROM:-0400 TZOFFSETTO:-0500 TZNAME:EST DTSTART:20201101T060000 END:STANDARD BEGIN:DAYLIGHT TZOFFSETFROM:-0500 TZOFFSETTO:-0400 TZNAME:EDT DTSTART:20210314T070000 END:DAYLIGHT BEGIN:STANDARD TZOFFSETFROM:-0400 TZOFFSETTO:-0500 TZNAME:EST DTSTART:20211107T060000 END:STANDARD BEGIN:DAYLIGHT TZOFFSETFROM:-0500 TZOFFSETTO:-0400 TZNAME:EDT DTSTART:20220313T070000 END:DAYLIGHT BEGIN:STANDARD TZOFFSETFROM:-0400 TZOFFSETTO:-0500 TZNAME:EST DTSTART:20221106T060000 END:STANDARD BEGIN:DAYLIGHT TZOFFSETFROM:-0500 TZOFFSETTO:-0400 TZNAME:EDT DTSTART:20230312T070000 END:DAYLIGHT BEGIN:STANDARD TZOFFSETFROM:-0400 TZOFFSETTO:-0500 TZNAME:EST DTSTART:20231105T060000 END:STANDARD BEGIN:DAYLIGHT TZOFFSETFROM:-0500 TZOFFSETTO:-0400 TZNAME:EDT DTSTART:20240310T070000 END:DAYLIGHT BEGIN:STANDARD TZOFFSETFROM:-0400 TZOFFSETTO:-0500 TZNAME:EST DTSTART:20241103T060000 END:STANDARD BEGIN:DAYLIGHT TZOFFSETFROM:-0500 TZOFFSETTO:-0400 TZNAME:EDT DTSTART:20250309T070000 END:DAYLIGHT BEGIN:STANDARD TZOFFSETFROM:-0400 TZOFFSETTO:-0500 TZNAME:EST DTSTART:20251102T060000 END:STANDARD BEGIN:DAYLIGHT TZOFFSETFROM:-0500 TZOFFSETTO:-0400 TZNAME:EDT DTSTART:20260308T070000 END:DAYLIGHT BEGIN:STANDARD TZOFFSETFROM:-0400 TZOFFSETTO:-0500 TZNAME:EST DTSTART:20261101T060000 END:STANDARD BEGIN:DAYLIGHT TZOFFSETFROM:-0500 TZOFFSETTO:-0400 TZNAME:EDT DTSTART:20270314T070000 END:DAYLIGHT BEGIN:STANDARD TZOFFSETFROM:-0400 TZOFFSETTO:-0500 TZNAME:EST DTSTART:20271107T060000 END:STANDARD END:VTIMEZONE BEGIN:VEVENT DTSTART;TZID=America/Detroit:20190928T180000 DTEND;TZID=America/Detroit:20190928T230000 DTSTAMP:20190924T195652Z CREATED:20190711T203558Z LAST-MODIFIED:20190924T195652Z UID:3318-1569693600-1569711600@thebonnellfoundation.org SUMMARY:Night of Hope DESCRIPTION:Saturday\, September 28th at 6pm\nLaurel Manor Banquet & Conference Center39000 Schoolcraft Road\, Livonia \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n Melissa Yeager\, CF Mom \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n Dylan Mortimer\, Artist \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n Kevf\, Entertainer \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n 98.7 The Breeze midday hostKim Adams\, Emcee \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n An evening of friends\, fun\, strolling dinner and music! We’re honored to have two dynamic speakers. Melissa Yeager’s daughter Claire Wineland inspired the movie Five Feet Apart and the CF community from California to Michigan before losing her battle with cystic fibrosis. Artist Dylan Mortimer has a beautiful story to tell after recently getting his second double lung transplant. You’ll be inspired by both speakers. For your entertainment Kevf will jam out a few tunes. He is an up and coming star who happens to have cystic fibrosis. \nA silent auction will be followed by a live auction with Emcee\, Midday host Kim Adams\, 98.7 The Breeze. \n \n \n \n \n \n CF Attendance:Adult persons with CF should avoid being at indoor events together because of the possible cross contamination of lung bacteria. If you find it necessary to be in the same room cover your cough\, wash hands/hand sanitizer – and do not shake hands. It’s preferable that you stay a good distance apart. Persons with B. Cepacia or other bacteria that are drug resistant should not attend. Thanks for looking out for one another. \n \n \n \n \n \n Sponsorship and Tickets\n \n \n \n \n \n \n Become a SponsorOrder Tickets\n \n \n \n \n \n \n \n Sponsors receive event tickets plus recognition in event materials. Select a sponsor level\, or download and print this form to sponsor by mail.\n\n \nPlatinum Level Sponsor\, $5\,000 \nIncludes premium company name / logo recognition plus eight tickets.\n \n \nGold Level Sponsor\, $2\,500 \nIncludes company name / logo recognition plus four tickets.\n \n\n \nSilver Level Sponsor\, $1\,500 \nIncludes company name / logo recognition plus two tickets.\n \n \nEvent Sponsor\, $500 \nIncludes name recognition plus two tickets.\n \n \n \n \n \n \n \n \nTeam Captain Ticket\, $125 \nForm a team of ten guests and get a free ticket. Or download and print this form to order by mail.\n \n \nEvent Ticket\, $125 \nJoin us for an evening of inspiration and entertainment.\n \n \n \n \n \n \n \n \n \nPlatinum Level Sponsor\, $5\,000\n\nGold Level Sponsor\, $2\,500\nSilver Level Sponsor\, $1\,500\nEvent Sponsor\, $500\nTeam Captain Ticket\, $125\nEvent Ticket\, $125\nPrintable sponsorship form (PDF)\n\n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n Thank you to our Night of Hope Sponsors\n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n Dominic and Molly Ferrante \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n Scott Morrison \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n John O’Brien Family \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n Thank you to our Night of Hope Donors\n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n Pure Life Day Spa \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n Lois TeicherScupltor \n \n \n \n \n \n Lillian and Mark Schostak \n \n \n \n \n \n Leigh DavidsonInterior Designer \n \n \n \n \n \n Kelly McCarty \n \n \n \n \n \n The Popped Kernel \n \n \n \n \n \n Marcia TournayArtist \n \n \n \n \n \n \n \n \n \n \n \n Dylan MortimerArtist \n \n \n \n \n \n Johan and Anna de Nysschen \n \n \n \n \n \n Great Lakes Pillow CompanyAnne O’Keefe \n \n \n \n \n \n Nancy Mastantuono \n \n \n \n \n \n Gourmet Savory \n \n \n \n \n \n Lori Tisko \n \n \n \n \n \n \n \n \n \n \n \n Margie PatchetArtist \n \n \n \n \n \n David and Lori Morrison \n \n \n \n \n \n John and Kob Bonnell \n \n \n \n \n \n Natalie Wicks \n \n \n \n \n \n Geri Aprile \n \n \n \n \n \n Feras Shammami \n \n \n \n \n \n \n \n \n \n \n \n Julie AlbaneseDecorative Artist \n \n \n \n \n \n Troy and Deb Wood \n \n \n \n \n \n Marylynne Erskine \n \n \n \n \n \n Henry Ford Breast ImagingMammography Department\, FairlaneLisa Cooper \n \n \n \n \n \n Purple Sky Jewels URL:https://thebonnellfoundation.org/event/night-of-hope/ LOCATION:Laurel Manor Banquet & Conference Center\, 39000 Schoolcraft Road\, Livonia\, MI\, United States END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/Detroit:20200307T183000 DTEND;TZID=America/Detroit:20200307T233000 DTSTAMP:20200127T151414Z CREATED:20190118T175303Z LAST-MODIFIED:20200127T151414Z UID:2838-1583605800-1583623800@thebonnellfoundation.org SUMMARY:14th Annual "For the Love of Marge" Event DESCRIPTION: URL:https://thebonnellfoundation.org/event/14th-annual-for-the-love-of-marge-event/ LOCATION:St. Mary’s Cultural and Event Center\, 18100 Merriman Road\, Livonia\, MI\, 48152\, United States END:VEVENT BEGIN:VEVENT DTSTART;VALUE=DATE:20200501 DTEND;VALUE=DATE:20200601 DTSTAMP:20200304T230845Z CREATED:20200204T202344Z LAST-MODIFIED:20200304T230845Z UID:4499-1588291200-1590966000@thebonnellfoundation.org SUMMARY:CF Awareness Month DESCRIPTION:May is National Cystic Fibrosis Awareness Month in the United States. Join thousands of others across the country to raise awareness of CF and what life is like with the disease that affects more than 30\,000 people in the United States. \nCystic Fibrosis (CF) affects more than just the lungs. This genetic disease causes constant lung infections\, but it also impacts other organs in the body where mucus builds up. \nWhile there is still no cure for CF\, advancements in treatment have made it possible for those with CF to live much longer than ever before. However\, they live under the risk of infection and health problems due to CF. A cure is still needed. \nAttend an event near you this month.  Whether it’s a fundraiser or an informational clinic\, every opportunity to help eliminate CF will increase the quality of life for those who born with it. URL:https://thebonnellfoundation.org/event/cf-awareness-month/ LOCATION:MI END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/Detroit:20200926T190000 DTEND;TZID=America/Detroit:20200926T203000 DTSTAMP:20201105T021445Z CREATED:20200204T204251Z LAST-MODIFIED:20201105T021445Z UID:4506-1601146800-1601152200@thebonnellfoundation.org SUMMARY:Night of Hope Celebration DESCRIPTION:Thank you to everyone who supported the Night of Hope! It was a great success!\nA Virtual Event featuring:Musical artists Jill Jack\, Bob Mervak\,Ashley Ballou-Bonnema and Carre’ Queen Kwong CallawayGuest Speakers Alaina Muckel and father Lou Cuglietta \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n Watch the Replay!\nEnter your name and email address for free access to the full event video! \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n\n \n\n\n\n Your Name (required)\n \n \n Your Email (required)\n \n \n\n \n\n\n\n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n Photo Gallery\nJust Added! Take a look behind the scenes of the virtual event. \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n Thank you to our Night of Hope Sponsors\n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n Tom and Lori Tisko \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n Ben and Yanny Go andThe Oakland Men’s Conference \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n Ron and Katherine Francek URL:https://thebonnellfoundation.org/event/night-of-hope-celebration/ LOCATION:MI\, United States END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/Detroit:20210421T190000 DTEND;TZID=America/Detroit:20210421T190000 DTSTAMP:20210310T024450Z CREATED:20210310T024450Z LAST-MODIFIED:20210310T024450Z UID:5975-1619031600-1619031600@thebonnellfoundation.org SUMMARY:Webinar: Manage Stress and Promote Self Care DESCRIPTION:Zoom Webinar URL:https://thebonnellfoundation.org/event/webinar-manage-stress-and-promote-self-care/ LOCATION:MI END:VEVENT BEGIN:VEVENT DTSTART;VALUE=DATE:20210501 DTEND;VALUE=DATE:20210522 DTSTAMP:20210301T150231Z CREATED:20210301T145138Z LAST-MODIFIED:20210301T150231Z UID:5951-1619827200-1621641599@thebonnellfoundation.org SUMMARY:CF Awareness Film Festival: Call for Entries DESCRIPTION:May is Cystic Fibrosis (CF) Awareness Month! The Bonnell Foundation is hosting the first CF Awareness Film Festival. URL:https://thebonnellfoundation.org/event/cf-awareness-film-festival-call-for-entries/ LOCATION:MI END:VEVENT BEGIN:VEVENT DTSTART;VALUE=DATE:20210524 DTEND;VALUE=DATE:20210525 DTSTAMP:20210301T150211Z CREATED:20210301T145559Z LAST-MODIFIED:20210301T150211Z UID:5953-1621814400-1621846800@thebonnellfoundation.org SUMMARY:CF Awareness Film Festival: Voting DESCRIPTION:May is Cystic Fibrosis (CF) Awareness Month! The Bonnell Foundation is hosting the first CF Awareness Film Festival. URL:https://thebonnellfoundation.org/event/cf-awareness-film-festival-voting/ LOCATION:MI END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/Detroit:20210610T160000 DTEND;TZID=America/Detroit:20210610T160000 DTSTAMP:20210527T180521Z CREATED:20210527T172751Z LAST-MODIFIED:20210527T180521Z UID:6188-1623340800-1623340800@thebonnellfoundation.org SUMMARY:Webinar: Discrimination and healthcare DESCRIPTION:Discrimination and healthcare: how it impacts YOU.\nWhen: Jun 10\, 2021 04:00 PM Eastern Time (US and Canada) \nWe will talk about the ways that policymakers and payers make decisions about whether or not to reimburse you and about covering your treatments. The system being proposed to state and federal policymakers was put forth by a self-appointed group that uses Quality Adjusted Life Years (QALY). The process for valuing treatments using QALYs puts a lower value on lives lived with a disability or chronic disease. We will give you the information you need to protect yourself\, your children and others facing these discriminatory practices. We will also cover the existing civil and disability rights laws that have created precedent against using QALYs in public health programs\, as well as threats at the state and federal level for incorporating the use of QALYs. \nRegister in advance for this webinar:\nhttps://us02web.zoom.us/webinar/register/WN_IrNZxnf4QAu-6ejmY4Aiiw \nLaura Bonnell Moderating / Webinar Speakers:\n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \nSara van Geertruyden\nExecutive Director @Partnership to Improve Patient Care (PIPC) \nSara Traigle van Geertruyden is the Executive Director of the Partnership to Improve Patient Care (PIPC)\, which is also chaired by former Congressman Tony Coelho\, original author of the Americans with Disabilities Act. Sara joined PIPC in January 2011\, and also serves as a Partner at the firm Thorn Run Partners. Her work is focused on policies to advance a patient-centered health system\, from patient engagement in research to driving outcomes that matter to patients in healthcare payment and delivery. Sara is a healthcare and welfare policy expert with over 25 years of experience\, beginning her career on Capitol Hill working for former Senator John Breaux (D-LA) from 1996-2003\, then as an attorney at the law firm Patton Boggs where she practiced in the public policy group handling regulatory and legislative issues related to health care\, welfare\, and appropriations for clients. Sara is currently also serving on the Board of Directors for the Center for Adoption Support and Education \n \n \n \n \n \n \n \n \n \n \n \n \nBeth Vanstone\nDirector @Cystic Fibrosis Advocacy Team\, CF Get Loud \nBeth Vanstone is a Director with the Cystic Fibrosis Advocacy Team\, CF Get Loud. She is the mother of two daughters\, the youngest who lives with Cystic Fibrosis. Beth has advocated on behalf of the Rare Disease Community as well as the Cystic Fibrosis Community for the past 19 years. In 2012 her and her then 11 yr old daughter successfully lobbied the Ontario Provincial Government to include the first gene modulator Kalydeco on the provincial formulary. CFGL and CF patients across Canada have been advocating to have recent adverse changes to the Regulatory Patented Medicine Review Board rescinded. She continues to work alongside the Canadian Cystic Fibrosis Community to have Orkambi\, expanded labeling for Kalydeco and Trikafta approved and funded in provinces across Canada. URL:https://thebonnellfoundation.org/event/webinar-discrimination-and-healthcare/ LOCATION:MI END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/Detroit:20220127T190000 DTEND;TZID=America/Detroit:20220127T190000 DTSTAMP:20220120T200059Z CREATED:20220120T195236Z LAST-MODIFIED:20220120T200059Z UID:7056-1643310000-1643310000@thebonnellfoundation.org SUMMARY:Webinar: How to Apply for Education Scholarships DESCRIPTION:Click to sign up for a Zoom webinar on how to apply for scholarships. URL:https://thebonnellfoundation.org/event/webinar-how-to-apply-for-education-scholarships/ LOCATION:MI END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/Detroit:20220504T190000 DTEND;TZID=America/Detroit:20220504T190000 DTSTAMP:20220419T132816Z CREATED:20220224T153128Z LAST-MODIFIED:20220419T132816Z UID:7194-1651690800-1651690800@thebonnellfoundation.org SUMMARY:Webinar: Breath from Salt with Bijal Trivedi DESCRIPTION:To register for this Zoom event\, click https://us02web.zoom.us/webinar/register/WN_tNW2b0_8Sxai7NOYgcbkDQ \nBijal P. Trivedi is an award-winning journalist specializing in longform narrative features about biology\, medicine\, and health. She currently works as the senior science editor for National Geographic. Just after the WHO declared a global pandemic in March\, 2020\, Bijal finished writing her first book: Breath from Salt: A Deadly Genetic Disease\, a New Era in Science\, and the Patients and Families Who Changed Medicine Forever (September\, 2020). Bill Gates listed Breath from Salt as one of his top five book picks for winter 2020. The book was also longlisted for the 2021 PEN/E.O. Wilson Literary Science Writing Award. \nBijal’s writing has been featured in The Best American Science and Nature Writing 2012\, National Geographic\, The New York Times\, Scientific American\, Wired\, Science\, Nature\, The Economist\, Discover\, and New Scientist. URL:https://thebonnellfoundation.org/event/webinar-breath-from-salt-with-bijal-trivedi/ LOCATION:MI END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/Detroit:20220512T190000 DTEND;TZID=America/Detroit:20220512T190000 DTSTAMP:20220419T123649Z CREATED:20220419T123401Z LAST-MODIFIED:20220419T123649Z UID:7323-1652382000-1652382000@thebonnellfoundation.org SUMMARY:Michele Ciancimino talks CF nutrition for the patient and caregiver DESCRIPTION:Nutrition is an critical part of anyone’s life\, but especially the CF community. It can also be a complicated aspect. When CF was first recognized in 1938 patients were told to eat a low fat diet because they couldn’t digest food\, but then doctors realized patients were too thin and not healthy. A high fat diet was recommended. But now we’re seeing a variation of vegetarian and Vegan in the CF world. And what does a high fat diet mean to the caregiver? A lot of overweight caregivers? We have fun and get serious as we tackle this discussion. \nRegister in advance for this webinar:https://us02web.zoom.us/webinar/register/WN_gSerMDhIRx2YYE9v-suhtQ \nSpeakers\nMichele Ciancimino\nCertified Holistic Health Coach/ Certified Fitness Nutrition Specialist @Goodness Girl \nWe all want to be healthy\, but so many of us struggle to figure out what to eat\, how much and when. Most give up without ever reaching their health goals. Michele Ciancimino is an Integrative Nutrition Certified Holistic Health Coach. Her personalized approach to nutrition relieves the overwhelm and confusion by providing a nutrition and lifestyle plan uniquely designed for the needs of each individual. Whether you are trying to achieve or maintain a healthy weight\, improve digestion\, balance hormones or blood sugar\, or you just want to learn how and what to eat to support the well-being of your unique body\, Michele’s personalized lifestyle coaching will move you from having knowledge to actually making your better choices more often\, so that you can enjoy continued success on your path to better health. \nLaura Bonnell\nFounder\, The Bonnell Foundation: Living with cystic fibrosis @The Bonnell Foundation: Living with cystic fibrosis \nLaura started the Foundation in 2010 because she saw a need to help families both financially and with mentorship. thebonnellfoundation.org URL:https://thebonnellfoundation.org/event/michele-ciancimino-talks-cf-nutrition-for-the-patient-and-caregiver/ LOCATION:MI END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/Detroit:20230303T190000 DTEND;TZID=America/Detroit:20230304T010000 DTSTAMP:20230306T111730Z CREATED:20230207T165732Z LAST-MODIFIED:20230306T111730Z UID:9138-1677870000-1677891600@thebonnellfoundation.org SUMMARY:St. Patrick's Day Fundraiser DESCRIPTION:Cost: $10 at the door \nA party to celebrate St. Patrick’s Day and The Bonnell Foundation! \nLive Irish music thanks to the band\, Odd Enough. Ten bucks at the door! Very affordable and your donations will help our programs.  URL:https://thebonnellfoundation.org/event/st-patricks-day-fundraiser/ LOCATION:Polish Sea League\, 2601 Edwin St\, Hamtramck\, MI\, 48212\, United States CATEGORIES:Fundraising END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/Detroit:20240511T090000 DTEND;TZID=America/Detroit:20240511T110000 DTSTAMP:20240712T205257Z CREATED:20230207T163527Z LAST-MODIFIED:20240712T205257Z UID:9123-1715418000-1715425200@thebonnellfoundation.org SUMMARY:Education Day DESCRIPTION:Meet and Greet with CF parents\nLearn about our new mentoring program. Children’s Hospital Nurse Wendi Tague and Social Worker Claire Haglund will be with us. Enjoy coffee\, yummy gourmet treats and friendship! \n \n \n \n \n \n \n \n \n \n \n \n Register Now:\n\n\n \n\n\n\n First name\n \n \n Last name\n \n \n Email\n \n \n Phone\n\n \n City\n\n \n Number attending\n \n \n Comment (optional)\n\n \nPlease leave this field empty. URL:https://thebonnellfoundation.org/event/education-day/ LOCATION:Meillie Coffee\, 22965 Woodward Ave\, Ferndale\, MI\, 48220 CATEGORIES:Education END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/Detroit:20250503T110000 DTEND;TZID=America/Detroit:20250503T140000 DTSTAMP:20250416T173042Z CREATED:20250103T144645Z LAST-MODIFIED:20250416T173042Z UID:11643-1746270000-1746280800@thebonnellfoundation.org SUMMARY:Education Day – Saturday\, May 3rd DESCRIPTION:Join us for a fun\, family-friendly meet and greet CF Community gathering / CF Education Day at the Next Step Studio & Gallery in Ferndale\, MI. Hot lunch (Thai food) included. This indoor/outdoor gallery experience is perfect for all ages\, with scheduled arrival and departure times for safety. We’ll have a family photographer on hand to take your free photos. A $5 registration fee per family ensures your spot. Click here to download a flyer. \n \n Register Now URL:https://thebonnellfoundation.org/event/education-day-2025/ LOCATION:Next Step Studio & Gallery\, 530 Hilton Rd.\, Ferndale\, MI\, 48220\, United States END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/Detroit:20260418T110000 DTEND;TZID=America/Detroit:20260418T133000 DTSTAMP:20260304T223317Z CREATED:20251010T170218Z LAST-MODIFIED:20260304T223317Z UID:12608-1776510000-1776519000@thebonnellfoundation.org SUMMARY:Education Day Gathering DESCRIPTION:Documentary Premiere & Caregiver Education Day \nWhen: Saturday\, April 18Time: 11:00 AM – 1:30 PM \nCost: Free to attendPlease Register by April 13 so we can plan for food. \nLocation:Next Step Studio and GalleryFerndalewww.nextstepstudio.com \n This special event will include:• A live podcast recording (last year it was such a hit we’re doing it again)• Community discussion and caregiver-focused education• Lunch• The premiere of our documentary\, Embracing Egypt: Connecting CF Families Across the Globe. Dr. Samya Nasr will be with us for the premiere.  \nThe film highlights the global challenges families face and the power of connection and advocacy in changing lives. It’s an opportunity to learn\, reflect\, and strengthen our caregiver community together. \nYou can view (and share) the trailer here:https://youtu.be/RYjlB25Cr9Y \nCaregivers do so much every single day. This event is designed to support\, educate\, and celebrate you.We would love to see you there. \n \n \n \n \n \n \n \n \n \n \n \n Register Now:\n\n\n \n\n\n\n First name\n \n \n Last name\n \n \n Email\n \n \n Phone\n\n \n City\n\n \n Number attending\n \n \n Comment (optional)\n\n \nPlease leave this field empty. URL:https://thebonnellfoundation.org/event/education-day-gathering-april-18/ LOCATION:Next Space Gallery\, 530 Hilton Road\, Ferndale\, MI\, 48220\, United States END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/Detroit:20260919T183000 DTEND;TZID=America/Detroit:20260919T230000 DTSTAMP:20251010T170623Z CREATED:20251010T170617Z LAST-MODIFIED:20251010T170623Z UID:12613-1789842600-1789858800@thebonnellfoundation.org SUMMARY:Sweet 16 Gala DESCRIPTION:Activity: live podcast for all attendees to take part in silent and live auction along with a raffle \nLive music and great food \nSpeakers (to be announced) but they will be siblings of people with CF and Aunts or Uncles of people with CF. URL:https://thebonnellfoundation.org/event/sweet-16-gala/ LOCATION:Laurel Manor Banquet & Conference Center\, 39000 Schoolcraft Road\, Livonia\, MI\, United States END:VEVENT END:VCALENDAR