CF Task Force
Raising awareness as a CF community
CF Task Force Raises Awareness
The Bonnell Foundation: Living with Cystic Fibrosis and Rock CF organized the CF Task Force in January of 2017. Our intent is to make certain we were raising awareness in our CF community. The CF Task Force of Michigan is made up of volunteers who have CF, or a parent of a child with CF. Our hope is to be a source of information for people in the CF community and lawmakers. This page will have the latest on CF issues and give you ways to get involved. If you need answers please email us at CFTaskforce.com (is it possible to do this and make these specific emails go to Don, Kelly, Emily and Me? We meet periodically to discuss our concerns (healthcare issues, raise CF awareness, preexisting conditions (A.C.A., I.C.E.R and more). We encourage you to get involved. Please shoot us an email at: thebonnellfoundation@
“I am glad to be part of the CF Task Force because we have to stick together as a CF community and raise awareness to local legislators and anyone
who will listen.”
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CF Task Force Members
Laura Bonnell founded the Bonnell Foundation in 2010. Bonnell is the mother of two college age daughters with CF. From the time the girls were born she knew the CF community needed a forum for CF parents, and a way to give financial assistance to families. For the past ten years the Bonnell Foundation has provided medical assistance, lung transplant grants and college scholarships to CF families. The foundation is well known for it’s Portraits of cystic fibrosis calendars that feature black and white photos with inspirational quotes from people living with the disease. Bonnell has been featured on the local ABC TV station, Fox news stations and in countless newspapers and magazine articles (from the Detroit News, Jewish News, Oakland Press and the Costco Connection).
Emily Schaller, 38, is a heroine with one goal in mind, to Rock CF (http://letsrockcf.org).
Equal parts spark, wit and humor, Emily is claiming her victories against cystic fibrosis having launched the Rock CF Foundation in 2007 to heighten public awareness and raise funds to increase the quality of life for everyone with CF. Emily created and manages an internationally acclaimed line of merchandise to help fulfill the mission of Rock CF. Today, Emily’s battle against this deadly genetic disease is printed in Runner’s World, FORBES, The Atlantic and SPIN magazines, the New York Times, The Washington Post, USA Today, NPR and posted on Competitor.com, Shape.com, the Associated Press, and various cystic fibrosis focused educational websites. She is a marathon running, super teacher and a speaker, addressing parents, patients and audiences about the effects of cystic fibrosis and the ever changing and improving treatments being made. Through Emily’s humor and personal experience she inspires the masses to transform their lives with exercise, diet and goal setting.
My name is Don Berzley, and I am a CF dad. My CF warrior is my youngest son Lorenzo. Since his birth 8 years ago, I have been on a mission to spread as much awareness for CF as I possibly can.
In the past 3 years I have made huge steps toward helping not just on a local level, but also at a national level. I am on the Family Advisory Counsel at Helen DeVos Children Hospital CF Clinic. Since 2017, I have been parent/family partner on the CFLN (Cystic Fibrosis Learning Network). In the CFLN I work closely with the clinic to improve parent/physician partnerships. I also attend CFLN conferences meeting many new parents, and clinical staff from CF clinics throughout the US. I am also a big proponent of trying to get more dads involved in CF related activities (we all need an outlet).
Aside from being a huge CF advocate, I am a huge geek. I love technology, particularly computers and cell phones. I am always looking for a way to enhance my devices. I have built quite a few computers in my time and enjoy helping people.
I am excited to take this next step in my life with the CF Taskforce. I thank Laura and Emily so much for giving me this opportunity to help others on this journey. We are all a family, looking to make more tomorrows.
My name is Kelly Klotz, I have two year old daughter named Kamryn with Cystic Fibrosis. My main job is currently staying home and caring for Kamryn but I also enjoy my time teaching group fitness at the YMCA of greater Grand Rapids. My family has found a passion in educating others about CF and raising money towards a cure. I have recently joined the Quality Improvement team at Helen DeVos Children’s Hospital and have been actively participating in events for the Cystic Fibrosis Foundation and other local organizations. I strongly believe in advocating for every patient, so that no one is left behind, and my hope is that one day CF stands for Cure Found.