Raising awareness about the importance of access to care for CF patients & their families
Jan. 9, 2017 (Southfield, MI) – The Bonnell Foundation today announced an important upcoming collaborative summit to spotlight cystic fibrosis (CF) and raise awareness about the disease and the public policy needs of the CF community in Michigan. The summit, “A Roadmap for CF,” will feature the newly formed statewide Cystic Fibrosis Task Force and presentations by key legislative representatives, advocacy experts and CF patients and their families. It will be held from on Saturday, Jan. 28, 2017, from 10:00 am – 1:00 pm, 26455 American Drive, Southfield, MI.
The summit is intended to bring together leading experts on CF, medical professionals, public policy makers, parents, patients, and caregivers to tackle public policy issues surrounding CF in Michigan and present a training to help the
CF community better engage with state lawmakers and key decision makers on the challenges of living with CF and what resources and tools are needed to navigate the disease.
For more information about the summit, visit www.thebonnellfoundation.org or email Laura Bonnell, president of the Bonnell Foundation, at thebonnellfoundation@gmail.com.