Emily is recovering nicely from pneumonia. She has her 8th picc line in. She is a rock star! An amazing girl. So strong. So behind in homework after missing two weeks of school! There is so much going on in the world of CF. The March on Hill is in March. We will talk to legislators about changes we need to see Congress that directly impact people with chronic illness. We have also recently seen an adult friend die due to CF and countless others waiting for double lung transplants. Some of them have no insurance. We’re working hard to try and figure out creative ways to help them fundraise and raise awareness in their states.
Life Is Good…
