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CF Task Force of Michigan

CF Task Force wants to address:

  • Affordable Care Act
  • Insurance companies refusing to cover AS Directed medications (maybe get other disease groups to join us to address this issue so our voices are louder together)
  • Resolution for the month of May (Bonnell Foundation working on)
  • Come up with a hash tag: #CFTaskForceMI
  • Packet of Information to give to families when they are first diagnosed
  • Ambassador program
  • Advocacy for adults
  • Educational briefing on the Hill and with pharmacies- CF Engagement Network will work on (Emily S. and Laura B.)
  • Medicaid time frame in which they get refills to people
  • Transitioning from college
  • Can’t get life insurance (why can cancer patients get it and CF people can’t)