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Hayley’s Story

My daughter Graysen was diagnosed “late” at 10 months old after an intense beginning of life. She was a preemie born at 34 weeks old and was in the NICU for 17 days and even with the NICU stay, she was not diagnosed with CF until after 2 inconclusive...

Ron’s Story

As a young boy growing up I always had breathing problems. My parents said I had Asthma and was treated for that on a daily basis but I still had many health issues. My mother who was a nurse saw that I got the medical care. I was tested with a sweat gland test but...

Kelly’s Story

The initials “CF” have forever changed our lives. The highs and lows make up our story. We have a wonderful group that dedicates each and everyday to make my son the healthiest version of himself. Teachers, nurses, doctors, pharmacists, RTs, therapists and...

Nick’s Story

I do not have CF , but I am the stepfather of a daughter with CF. She wouldn’t use that term since I am the only Dad she knows. Living with a child with CF is a constant mental struggle. There are so many great days opposed to bad days that your mind at times...

Living with CF by Jared T.

How CF Has Affected My Life and Family Cystic Fibrosis is a disease that affects 30,000 people in the United States. On paper, it affects the respiratory, digestive, and reproductive systems. In reality, not only does it affect physical health, but it also affects...
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