(844) 297-8423
(844) CYSTIC-FIBROSIS
Select Page
Celebrate!!

Celebrate!!

Life is even better when your daughter is found not to be sick enough to be admitted!!! Fever, after fever, after fever had us concerned.  Temps from 102 to 103.5, coughing, motrin, more motrin.   We’re certain she will be admitted. We head to the hospital today, bags...
8th Grade Graduation

8th Grade Graduation

8th grade graduation was a perfect day. Friends and family, what more could we ask for? Emily is moving on to the High School and we couldn’t be happier. We love milestones. We have made it this far, we’re excited for the future.  It’s bright. New medications coming...
Florida, Fun & Treatments

Florida, Fun & Treatments

The girls had fun visiting family in Florida.  Turns out too the ocean salt is good for cystic fibrosis.  They are on a drug that does the same thing as sea salt, hypertonic saline solution, they could skip it while in Florida.  The ocean did all the work!
Life Is Good…

Life Is Good…

Playing in the snow during the last snow day.  Today the girls are on winter break, but we got a ton of snow that shut down other schools. Molly is skiiing Crested Butte in Colorado!  And Emily is fully enjoying life as an only child!! Living every...
Living Life On A Snow Day With A Picc Line

Living Life On A Snow Day With A Picc Line

Emily (far right) hangs out with her sister (green scarf).  Emily can’t wait to get her picc line out but has had a wonderful snow day, full of fun outside!  She jumped off the swing set, making sure to land on the arm with out the picc line.  She built an igloo and...
Life Is Good…

Life Is Good…

Emily is recovering nicely from pneumonia.  She has her 8th picc line in.  She is a rock star!  An amazing girl.  So strong.  So behind in homework after missing two weeks of school! There is so much going on in the world of CF.  The March on Hill is in March.  We...
Page 1 of 212