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Girls Are Doing Great

Girls Are Doing Great

We know not everyone is having a healthy holiday, so we are very thankful the girls are healthy.  Usually by now Emily has been hospitalized, but besides a cold, no bad health news to report!  We’re wishing everyone a Happy New year.
PFT Lab

PFT Lab

The PFT lab is where we always find out how we’re doing. Emily has had such a struggle with her pulmonary function test.  We have had to increase the amount she does them, be consistent and not let her do anything else until they’re through.  What are you doing to...
Making Calls Across The Country

Making Calls Across The Country

We’re calling every CF clinic in the U.S. to see if they’ll hand out flyers for the CF calendar.  Our hope is that people will want to be in the calendar, buy them so we can make huge donations to CF research and start a movement of education for parents who have...
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