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Kalydeco: A Homerun For CF

The FDA has approved KalydecoTM (ivacaftor), the first medicine to treat the underlying cause of cystic fibrosis (CF), a rare, genetic disease. Kalydeco is approved for people with CF ages 6 and older who have at least one copy of the G551D mutation in the cystic...

Cystic Fibrosis Care Centers

The University of Michigan C. S. Mott Children’s Hospital 1540 East Hospital Drive, Ann Arbor, MI 48109 (734) 936-6267 http://www.mottchildren.org DMC Children’s Hospital of Michigan – Specialty Center Detroit 3901 Beaubien Street, Detroit, MI 48201...
Celebrate!!

Celebrate!!

Life is even better when your daughter is found not to be sick enough to be admitted!!! Fever, after fever, after fever had us concerned.  Temps from 102 to 103.5, coughing, motrin, more motrin.   We’re certain she will be admitted. We head to the hospital today, bags...
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