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Kelly’s Story

The initials “CF” have forever changed our lives. The highs and lows make up our story. We have a wonderful group that dedicates each and everyday to make my son the healthiest version of himself. Teachers, nurses, doctors, pharmacists, RTs, therapists and...

Nick’s Story

I do not have CF , but I am the stepfather of a daughter with CF. She wouldn’t use that term since I am the only Dad she knows. Living with a child with CF is a constant mental struggle. There are so many great days opposed to bad days that your mind at times...
FDA Approves New Cystic Fibrosis Treatment

FDA Approves New Cystic Fibrosis Treatment

Via CNBC The U.S. Food and Drug Administration said Thursday it had approved the use of Vertex Pharmaceuticals’ Orkambi, a drug aimed to treat patients with cystic fibrosis, on patients who are at least 12 years old. The company’s shares were temporarily...
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