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Life Is Good…

Life Is Good…

Emily is recovering nicely from pneumonia.  She has her 8th picc line in.  She is a rock star!  An amazing girl.  So strong.  So behind in homework after missing two weeks of school! There is so much going on in the world of CF.  The March on Hill is in March.  We...
Girls Are Doing Great

Girls Are Doing Great

We know not everyone is having a healthy holiday, so we are very thankful the girls are healthy.  Usually by now Emily has been hospitalized, but besides a cold, no bad health news to report!  We’re wishing everyone a Happy New year.
PFT Lab

PFT Lab

The PFT lab is where we always find out how we’re doing. Emily has had such a struggle with her pulmonary function test.  We have had to increase the amount she does them, be consistent and not let her do anything else until they’re through.  What are you doing to...
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